The Precious Pearl Of My Life

Thank you Allah for more years to come, Alhamdulillah.

2011-10-14T02:06:00.004+08:00

Selamat Harijadi Yang ke 15, wahai sayangku amanah dari ILLAHI.... sudah tiada bicara yang panjang untuk Mama katakan hanya bagi Mama setiap tahun adalah anugerah yang amat bermakna buat Mama....alhamdulillah

Anugerah Istimewa Kurniaan Ilahi
Dalam keadaanku menekan dada menahan gelora
tika menyelirat fikiranku bertafakur
mencari tafsiran untuk peristiwa hiba
puas aku menyelami lambang yang terkandung
takwil cahaya mataku dilahirkan begitu

Ibuku tercinta mendatangiku
katanya wahai zuriatku sayang
hentikanlah kepiluan dalam hatimu
bersangka baiklah terhadap Ilahi
Tuhan Yang Menguasai seluruh alami
mohonlah yang terbaik dari anugerah ini

Telahku pohon pada Tuhan
Yang Mempunyai Arasy yang Agung
sudahku pinta dengan ayat-ayat shifaNya
dengan sabar aku mencari penawar
ke hujung dunia aku datangi
dengan harapan setinggi gunung
shifa untuk cahaya mataku

Sepahit hempedu untuk aku telan
hakikat yang terlalu menekan
dua purnama kemudian
aku pasrah dan menyerah diri
kepada kekuasaan, Tuhan Yang Kuasa
siapalah aku untuk memaksa
menyelami kiasan yang dilambang
cahaya mataku dilahirkan tidak sempurna

Sehinggalah satu masa
ibuku mendatangi aku lagi
bertanyakan khabar
tentang zuriat turun temurunnya

Beginilah keadaannya, ibu
walaupun belum senyum
aku masih mengharap
air mata hibanya tidak pernah kering
siangnya jadi malam,
malamnya bertukar siang
makannya tak pernah kekal di dalam
kurus tubuh kecilnya tidak berisi
tidak bisa berjalan mahupun duduk
terlantar tidak bermaya
tidak mampu membuat pergerakan
seluruh tubuhnya keras dan kejang
sukar untuk aku mengerti
entah bisa mendengar
entah bisa melihat
begitulah dia dengan dunianya
perkembangannya, pendakian perlahan
seluruh pelusuk aku mencari ikhtiar
tidak lupa memanjatkan doa
kepada Maha Pemberi Syifa

Kata ibu wahai zuriatku
apa lagi yang engkau mahu
kunci syurga ada ditanganmu
peliharalah dia dengan kasihmu

Aku terpegun tanpa ucapan
sebesar alam raya dunia sejagat anugerah ini
keberkatan rahmat dari Ilahi
sebaik-baik Pemberi rahmat
kini aku menginsafi dan mengerti
selama ini aku tidak menyadari
kunci syurga yang ada ditanganku
anugerah istimewa kurniaan Ilahi

lightnur 15/1/2011 (Blogger)

HAPPY BIRTHDAY SWEET 14

2010-10-14T09:16:00.003+08:00

14 years ago... i can't even closed my eyes to sleep after being told
that you are going to be abnormal two weeks before you were born,tried not to
believe and denied what they have predicted about you and always so
protective for anything concerned about your well being, never take anyone saying but kept my faith and seek the guidance only from the almighty, did I ever regret...yes in the beginning of your birth but not now as you are really precious that allah have given me.....HAPPY BIRTHDAY SAYANG - YOU ARE 14 TODAY...yes still seek blessing from Allah swt as you surely have many things to catch up dear....
Taken this morning.....

Ada kah prihatin....

2010-06-16T11:43:00.001+08:00

Menyelami naluri ibu yang mempunyai anak istimewa dan serasa kerdil sangat untuk bersuara....adakah suara ini kedengaran....tapi insyaallah allah tahu hasrat ini....biar allah beri jawapan ini....

Dalam ingin menjalani serta berbuat sesuatu yang baik, sudah pasti ada saja halangan yang mendatang, perlu kah aku gentar, sesekali TIDAK kerana aku tahu aku lakukan segala-galanya buat yang mencipta.......

Seminar - "Selaut Kasih Segunung Harapan" prihatin lah......

2010-04-26T15:22:00.007+08:00

TAJUK : SEMINAR KHAS TENTANG ANAK-ANAK ISTIMEWA “SELAUT KASIH SEGUNUNG HARAPAN” ...

Selaras dengan hasrat murni Kerajaan Negeri Melaka melalui Institut Pengurusan dan Integriti Melaka (INSPIM), PUTRA Specialist Hospital Melaka (PSH) dengan kerjasama BNR Global dan Institut Jantung Negara (IJN) akan melancarkan satu program khusus untuk golongan Kanak-Kanak Istimewa . Maklumat lanjut program adalah seperti berikut :-

Program : “Seminar Selaut Kasih Segunung Harapan”
Tarikh : 3hb – 4hb Julai 2010
Tempat : Avillion Legacy Hotel, Melaka
Masa : 8.30 pagi – 5.30 petang

Seminar dengan semangat kerjasama yang julung-julung kali diadakan ini akan menyentuh kepada pelbagai aspek Kanak-Kanak Istimewa dan akan disampaikan oleh tenaga professional dari IJN, IJN Foundation dan Putra Hospital Melaka. Di samping itu, pengakuan serta kisah sebenar dari seorang ibu yang mempunyai kanak-kanak istimewa juga diselitkan di dalam program ini. Setiap penyertaan adalah terbuka kepada golongan ibubapa, guru-guru pendidikan khas, kakitangan perubatan, golongan belia mahupun orang perseorangan dari seluruh negara.

Yuran penyertaan seminar adalah RM300.00 seorang iaitu meliputi keperluan makan-minum serta perkhidmatan tambahan yang disediakan oleh pihak penganjur untuk 2 hari. Disamping itu, pihak penganjur juga mengalu-alukan tajaan/sumbangan dari agensi-agensi / badan korporat mahupun dari persendirian untuk penyertaan Ibu Tunggal dan golongan yang tidak berkemampuan seperti berikut:-

Tajaan Berlian - RM3,000.00 bagi 10 orang peserta*
Tajaan Emas - RM2,100.00 bagi 7 orang peserta*
Tajaan Zamrud – RM1,500.00 bagi 5 orang peserta *

(*5% daripada kutipan akan didermakan kepada Pusat Penjagaan Kanak-Kanak Istimewa Negeri Melaka yang dipilih oleh Jawatankuasa. Setiap pembayaran melalui cek hendaklah dibuat di atas nama “BENDAHARI NEGERI MELAKA” atau terus melalui akaun MAYBANK : 554026000401. Semua tajaan akan mendapat Pelepasan Cukai)

Untuk penyertaan atau tajaan dan sebarang pertanyaan, sila hubungi sekretariat program di pejabat Institut Pengurusan dan Integriti Melaka (INSPIM) di talian 06-3350334 / 063350939. Maklumat lanjut juga boleh dirujuk menerusi laman web rasmi di http://www.inspim.gov.my.

Pertanyaan juga boleh di ajukan kepada BNR Global di talian : 019-3618983

ATURCARA (HARI PERTAMA)

8.30pg – 9.00pg : Pendaftaran Peserta dan minuman Ringan
9.00pg – 9.45pg : "Tahniah, Anda Di kurniakan seorang anak istimewa" - Profesor Madya Dr Sharifah Zainiyah Binti Syed Yahya, Jabatan Kesihatan Komuniti, Fakulti Perubatan & Sains Kesihatan, Universiti Putra Malaysia.
9.45pg -10.00pg : Sesi Soal Jawab
10.00pg– 10.30pg : Perasmian oleh YB. Datuk Hjh.Norpipah Bte Abdol
Pegerusi Jawatankuasa Negeri Hal Ehwal Wanita, Pembangunan
Keluarga Dan Kesihatan.
10.30pg –10.40pg: REHAT
10.40pg–11.25pg : “Memahami anak-anak istimewa dari perspektif pertuturan dan
komunikasi” – Puan Yazmin Binti Ahmad Rusli, Jabatan Audiologi
dan Pertuturan (UKM)
11.25pg –11.35pg : Sesi Soal Jawab
11.35pg –12.20tgh: “Stimulasi pertuturan dan komunikasi dari peringkat bayi
hingga ke tahap Umur Persekolahan” Dr Norizan Rajak
Pengarah dan Pakar Konsulting Bahasa, Urbane Ethos Consultancy
Sdn. Bhd
12.20tgh–12.35tgh: Sesi Soal Jawab
12.35tgh– 2.00ptg: MAKAN TENGAHARI/LAWATAN KE SESI PAMERAN PENAJA
2.30pm – 3.15pm : “Perkembangan Bahasa Kanak-Kanak – Apa yang anda perlu tahu?
Prof. Madya Dr Rogayah A.Razak,Jabatan Audiologi &
Sains Pertuturan,UKM
3.15pm – 3.30pm : Sesi Soal Jawab
3.30pm – 4.45pm : REHAT
4.15pm – 5.00pm : “Kaedah Alternatif Terapi melalui muzik” - Ms Lim Kar Gee,
Enrich Consulting and Music Therapy Centre.
5.00pm : Minum Petang

ATURCARA (HARI KEDUA)

8.30pg – 9.00pg : Pendaftaran Peserta dan Minuman Ringan
9.00pg – 9.45pg : “Pengenalan kepada Masaalah Pembelajaran (LD) : Siapa perlu
ditemui, Apa Yang Harus Di Lakukan dan Kemana Hala Tuju”,
Dr Norizan Rajak, Pengarah dan Jururunding ‘Linguist’, Urbane
Ethos Sdn Bhd
9.45pg– 10.00pg : Sesi Soal Jawab
10.00pg– 10.15pg: REHAT
10.15pg-11.05pg : “Memperkasa Potensi Kanak-Kanak Berkeperluan Khas Melalui
Pendidikan Khas Berkualiti” – Puan Hapsah Binti Yusof, Jabatan
Pendidikan Khas,Institut Pendidikan Guru
11.05pg– 11.20pg: Sesi Soal Jawab
11.20pg–12.30tgh: “Saya Insan Istimewa 2”Tips khas Untuk Ibubapa – Pakar Psikologi
Kanak-Kanak (Putra Hospital)
12.25tgh–12.40tgh: Sesi Soal Jawab
12.40tgh– 2.00ptg: MAKAN TENGAHARI/LAWATAN KE SESI PAMERAN PENAJA
2.00ptg – 2.15ptg: Persembahan Dari Kanak-Kanak Istimewa (TBA)
2.15ptg – 3.00ptg: Jabatan Kebajikan Masyarakat – En Termizi Bin Ali Razak
3.00ptg – 3.15ptg: Sesi Soal Jawab
3.15ptg – 3.30ptg: REHAT
3.30ptg – 4.00ptg: “Nabila Mutiara Hati Ku” Puan Hjh Bedah Abdul Razak
4.00ptg – 4.45ptg: Mengurus Jiwa Dalam Menghadapi Cabaran Kehidupan -
Tuan Hj Mohd Yusof Bin Din,Ketua Jabatan Pembangunan
Sosial, Institut Perkembangan Minda (INMIND).
4.45ptg– 5.00ptg : Sesi Soal Jawab
5.00ptg– 5.15ptg : Majlis Perasmian Penutup Oleh: Y.A.Bhg. Datin Seri Datuk Wira
Hjh. Asmah Bt Abdul Rahman.

Minum Petang / Bersurai

What about a Down's Syndrome

2010-01-01T21:44:00.003+08:00

Two Words
by Cheryl Ward

Your birth brought us closer
As death lingered near
Your strength as you struggled
Gave flight to our fear

Down Syndrome they whispered
on the day after your birth
Two words that portrayed
A false image of your worth

Those words did not tell us
Of the love you would bring
Or the power your smile has
To make our hearts sing

Down Syndrome didn't tell us
What kind of child you would be
Filled with amazing surprises
Shared with your father and me
Hard work, determination,
Teaching and learning, it's true

Down Syndrome means much of this
For each of us, not just you
Wonder child, spirited child
You've grown and you've thrived
Your every achievement

Still fills us with pride
No matter the voice used
Two words can't describe
The fullness you've added
To so many lives
Down Syndrome, those frightening words
Whispered so long ago
Never did they prepare me
For the person I now know.

WELCOME 2010, GOODBY 2009

2010-01-01T03:02:00.001+08:00

ANOTHER YEAR....THANK YOU ALLAH

Utusan Online - Mingguan Malaysia

2009-11-26T08:28:00.005+08:00

ARKIB : 22/11/2009
Nabila mutiara hatiku - Bedah

Oleh RABIATUL ADAWIYAH KOH ABDULLAH ( )
adawiyah.koh@utusan.com.my

BERAT mata memandang, berat lagi bahu memikul, setiap kejadian Allah bersebab, saya reda apa yang berlaku," itulah kata seorang ibu, Bedah A. Razak membesarkan anaknya yang bukan sahaja menghidap sindrom down malah disahkan menderita Atrioventricular Septal Defect (AVSD) iaitu penyakit jantung kongenital kompleks dan beberapa komplikasi yang lain.

Seperti satu keajaiban, Bedah berjaya mendidik anaknya, Nabila Abd Raes seperti kanak-kanak normal lain. Kesempatan menjamu selera bersama Nabila mengubah persepsi tentang golongan sindrom down. Seperti kanak-kanak normal lain, dia mampu makan dengan tertib. Percakapan dan tingkah lakunya juga sopan dan berbudi bahasa. Terdetik di hati, ini mungkin keajaiban Tuhan. Pengorbanan Bedah membesarkan anaknya, Nabila tidak ternilai. Kekuatan ini perlu menjadi contoh kepada masyarakat. Yang pasti Bedah tidak pernah menyisihkan anaknya Nabila, ke mana sahaja Bedah pergi Nabila akan dibawanya bersama. Pada 27 Mac yang lalu, Nabila telah selamat dibedah dan pembetulan kepada setiap lubang dan injapnya telah di baik pulih oleh pakar Institut Jantung Negara (IJN).

"Apa yang mampu saya lakukan ialah reda dan supaya Allah memberikan saya kekuatan melalui detik cemas dengan tabah. Di dalam minda saya, saya gambarkan keindahan yang akan saya lalui bersama Nabila dan keluarga saya yang lain. Kini, saya seronok melihat dia bermain solekan sendiri, mewarna dan kadang kala menyanyi dengan bahasanya tersendiri," katanya.

Buat masa ini, Bedah berfikir untuk memberi latihan vokasional, mungkin Nabila boleh mengambil bidang kecantikan. Siapa tahu Nabila boleh menjadi anak sindrom down yang pertama sebagai pakar solekan.

"Kehadiran Nabila memberikan saya satu kekuatan untuk sabar, bersikap terbuka, berfikiran positif dan yakin diri, kehadiran Nabila anak istimewa yang teristimewa. Dia ialah mutiara hatiku," bicaranya dalam keadaan sebak.

Mengimbas kisah 13 tahun lalu, dua minggu sebelum Nabila lahir, Bedah sudah dimaklumkan tentang keadaan anaknya.

Ketika itu, dia berazam ingin menjadikan anaknya paling istimewa. Risau dan bimbang keadaan anaknya pada masa depan, membuatkan Nabila menangis.

"Pada hari kedua dilahirkan, Nabila dipindahkan ke Pusat Perubatan Universiti Malaya untuk menjalani pembedahan kolostomi ke atas ususnya.

Tiga minggu selepas pembedahan membentuk lubang dubur, saya diberitahu oleh doktor bahawa Nabila turut menghidap penyakit jantung kongenital atau jantung berlubang. Setelah berusaha, kami berjaya mendapatkan khidmat kepakarannya. Kemudian, Nabila mula menjalani siri pembedahan jantung seawal usianya tujuh bulan lagi," katanya.

Dugaan ini tidak pernah mematahkan semangat Bedah sekeluarga. Melihat Nabila yang berjuang untuk terus hidup, Bedah kuatkan semangat.

Berkongsi teladan dengan pembaca, Bedah berpendapat setiap ibu bapa perlu diberi didikan untuk menjaga anak sindrom down.

"Dulu, saya panik ketika kuku Nabila yang masih bayi menjadi kebiruan secara tiba-tiba. Mungkin saya bernasib baik kerana tahu menggunakan internet. Saya mula mendapatkan maklumat tentang sindrom down melalui internet. Tetapi bagaimana dengan mereka yang tiada asas internet? Saya harap dengan adanya perkongsian kisah saya dan Nabila dapat membantu masyarakat di luar sana," ujarnya yang banyak menerima sokongan daripada keluarga.

Tambahnya, pengetahuan tentang anak abnormal perlu didedahkan ketika mengandung lagi dan sebelum melahirkan anak.

Setiap keluarga jangan menyerah kepada takdir tetapi perlu bertindak untuk berdepan dengan keadaan ini.

"Sebelum pembedahan jantungnya, selama 12 tahun Nabila tidak fokus pada pembelajaran. Tetapi saya tidak lupa mengajarnya tentang latihan asasi seperti makan dan penggunaan tandas. Maklumat itu saya perolehi daripada internet. Bagi suri rumah tangga, kumpulan sokongan sangat penting. Melalui persatuan, ceramah, dan bengkel, mereka akan mendapat maklumat. Siapa kata anak sindrom down sukar dibentuk? Semuanya perlu usaha ibu dan bapa itu sendiri," ujarnya.

Atas kesedaran membantu masyarakat, Bedah dan suami menubuhkan syarikat BNR Global untuk memberi bimbingan melalui kumpulan-kumpulan sokongan.

"Ramai ibu-ibu tidak arif tentang menjaga anak kurang upaya dan banyak maklumat tidak fokus kepentingan anak-anak. Misalnya, di Urban Ethos Consultancy membantu peningkatan pembelajaran Nabila seperti pertuturan. Selain bersekolah di kelas pendidikan khas di Sekolah Kebangsaan Seksyen 20, Shah Alam, Nabila kini boleh memperbaiki kemahiran yang dia ada," katanya. Sementara itu, Bedah mengalu-alukan orang ramai membantu Yayasan Institut Jantung Negara (IJN) dengan menghubungi talian 03-26006219 . Bagi mereka yang berminat untuk menyertai seminar BNR Global bolehlah menghubungi Bedah di bnrglobal@gmail.com

Give Me A Chance in the aid of IJN Foundation organised by BNR Global

2009-10-28T17:53:00.006+08:00

IJN Foundation believe in a continuous effort of fund raising and creating awareness :-
1. To raise funds in aid of poor and needy pediatric
heart patients in meeting the costs of heart
operations.
2. To raise awareness in the community of the various
related aspects of pediatric heart patients care.
3. To create sharing and caring attitudes among the
community for the pediatric (children and babies) poor
and needy heart patients of IJN.

Give Me A Chance” aim to create an awareness especially to public, parents to be and parents with :-
* Infant and children that was born with a down’s
syndrome disabilities that usually diagnosed with a
complexity of congenital heart disease in several
stages.
* Infant and children that was diagnosed with a
complexity of congenital heart disease but come from a
very poor family background.

“GIVE ME A CHANCE” FUNDRAISING SEMINAR in aid of IJN Foundation
DATE : 7th November 2009 (Saturday)
TIME : 9.00am – 4.30pm
VENUE : IJN Auditorium, 145 Jalan Tun Razak, 50400 Kuala Lumpur
TARGETTED AUDIENCE :

* Parents
* Teachers/Educators
* Hospital Administrators
* Down Syndrome Associations

PARTICIPATION FEE : RM120 per participant

10% discount for IJN Foundation members

RM100 for group of 5 and above

RM100 for Early Bird – on or before 15 October 2009

PROGRAMME
8.30am – 9.00am : Registration of Participants & Refreshments
9.00am – 9.30am : Heart Disease Among Children

Dr Nomee Mohd Radzi

Consultant Paediatric Cardiologist

Institut Jantung Negara
9.30am – 10.00am : Opening Ceremony

YABhg Toh Puan Dato’ Seri Dr Hajjah Aishah Ong

Chairman IJN Foundation
10.00am – 10.30am : “A Mother’s Sharing”

Hajjah Bedah binti Hj Abdul Razak
10.30am – 11.30am : “I am a Special Child”

Dr. Fauzi Ismail

Paediatric Psychiatrist Hospital Kuala Lumpur
11.30am – 12.15pm : “Development & Care for Special Child – Achieving a Child’s Potential”

Dr. Norizan binti Razak, PhD

Director & Consulting Linguist - Urbane Ethos Consultancy Group
12.15pm – 2.00pm : LUNCH
2.00pm – 2.15pm : Special Performance by Children
2.15pm – 3.00pm : Junior eXtraDICTION® Demonstration

Facilitator – Encik Soh Wee Hock

Chief Designer and Dreamer of Ed-Infinitum (M) Sdn Bhd
3.00pm – 4.00pm : Cane Rejuvenation Exercise Programme

Facilitators – Encik Yong Yew Tuck & Dato’ Yee Weng Loon
4.00pm – 5.00pm : TEA & END OF PROGRAMME

Hari Raya Celebration with a new heart

2009-09-20T05:10:00.002+08:00

It is indeed a special hari raya for the whole family...thanks to the almighty...to give us the moment to celebrate 2009 hari raya in allowing us to see Nabila in her joyous Eid Mubarak with a healthy and a corrective done to her heart. For me its the greatness gift from allah swt...amin.

Nabila's Diaries - Allah blessed her......

2009-07-24T07:50:00.017+08:00

How should I start, it took me four months to update this moment, it was kind of traumatic moment for me...but I will keep it posted for others to read....Hope IJN don't mind I shared this pictures of Nabila, reason being at least I create some awareness. Nabila was addmitted on the 23rd March 2009 at 2.00 pm at Institut Jantung Negara.

As usual she looks like she is going for a relaxing hotel stay...although I kept her informed that she will have an open heart surgery "Mama nak Nabila sihat...tak biru-biru, Nabila kena kuat, doktor belah kat sini...sakit sikit je...Nabila nak sihat kan" means mama wants you to be healthy and strong, the doctor will do it here by showing exactly where the scare will be, just a slight pain, you want to be healthy aren't you she will then repeat "sakit sikit je" means very slight pain, each time she says that I will hug her, trying my level best and hold back my tears....I kept on repeating the lines everyday....and keep saying it will be alright....

Good about IJN or maybe thats the normal way to have an induction program for every heart patient that will go for surgery...what do and don't before and after each operation...

In this pictures she was browsing the IJN pamphlet....she acted as though she can read that's her she will show her interest in reading and viewing.....

Look at her I believe if she is normal, she will be an intelligent girl,but she is in her own intelligency, never she will make herself wasting time....you can see books, drawing and coloring block will always with her....

This picture was taken on the 25th March 2009,the nurses pushed nabila to the CC theater, the day that a cardiac cath was done...Cardiac catheterization (heart cath) is the insertion of a catheter into a chamber or vessel of the heart. This is done for both investigational and interventional purposes. http://en.wikipedia.org/wiki/Cardiac_catheterization.

Alhamdulillah everything when well, after the CC I was called and the MO told me that they might do the operation on Thursday, 26th March 2009 instead Friday, 27th March 2009....and Nabila was asked to start fasting from midnight onwards, well I felt a little confused and scared....in my tahajud that night I told allah "oh allah I whisper in my heart "give the best and bless her, you have given me the chance for almost 13 years to look, love and care for her....and now I am returning it to you allah...you know what best for her...as a care taker and guardian to her I "redha"....I was crying my heart out...my positive thinking says that I need to be strong and I have gone this far...this is the choice that I have choose, in spite of many objection and ideas...for me no turning back...no regret....thanks to allah for the moment....At about 2pm on Thursday, the MO came and told me they cannot proceed because there's a delay from the first case....kinda relieved as I am a bit scared, my thinking does not telly with my intuition when they said that they wanted to do on Thursday, I am more comfortable if they want it to be done on Friday...that the strong feeling I had at that time....

27th March 2009, it was a Friday....a day of a "penghulu hari" a day start for a muslim week...as early as 6am I have woke her up...its a third day I have to gave her an antiseptic bath...when I reaches her chest I will remind her "doktor akan buat kat sini...nabilah tak perlu risau sakit sikit je...doktor bagi ubat..." means "the doctor will do it here and don't be afraid, its a slight pain and they will gave you medication" I cannot hide my sorrow I broke down and quickly hug her and usually she did not cry but that morning she cried, she cried and the words that came out from her was "mama maaf" means "forgive me mama"....how could I hold back my tears....I have been hiding it all this while but that morning it was the most difficult moment for a person by the name of "mama" to handle...nine months I conceived her and nearly thirteen years she is always by her side...make a choice to leave the job I love...its always a choice for a mother to do.....

Another test when she refused to cooperate to be transferred to the stretcher when the staff are ready to push her to the OT, she told me "Benci Mama" I hate you was a traumatized moment in my life, after kisses her, I adjourned myself without any of my immediate family notice, I cried at the staircase....she would not understand and I know that's her expression to say why you make me suffers, I could be wrong but alhamdulillah I know that's not what she wants to said or may be not but at least I managed to tell how I love here, no mother would ever want to make her children suffers....for me its a test that I really valued every moment in bringing her up.

A moment that I will never forget...after eight hours in the operation theater...exactly at about 5pm, I was told that the operation was successful done and she was transferred to the Intensive Care Unit....what a relieved and my "syukur, alhamdulillah" to Allah, I was with Mak Su my husband's auntie from Pulau Pinang at the ICU waiting lobby...My husband has to sent two of my eldest daughter back to UIA Gombak,that means I'm alone without my husband and other children...suddenly the ICU head of security called "Keluarga untuk Nabila Abdul Raes sila masuk ke ICU, pakar sedang menunggu" - the family of Nabila please come in the surgeon is waiting...

At that time suddenly I can't hardly stand, I felt shortness of breath...luckily Mak Su told me to be more calm...think of Allah...well I remembered how I walked very slow just to regained my strength...

When I saw her, I do not know what to do, whether I should cry...but I managed to make myself calm and yet I can sense that my mind and soul are in the air.... Mr Ahmad Khadri that assisted Mr KK Pau was there, he started to explained about what they had done to Nabila's heart...honest I can't even focused to what he said...

Four and a half days she was in the ICU, with many doa from us and others, with the supports from my immediate family, siblings, in laws and friends and not forgetting Ms Evelyn Ch'ng and her brother-in-law, Dato Yee who actually have sacrifices her time to come just to do healing for her. For me besides having my faith to Allah, I will never gave up hope to find other alternatives for Nabila for the benefits of her well being.

To see her open her eyes and to see one by one of those massive gadgets on her been removed, I am more relief....Thanks to Allah....Syukur.

What I gather from here, all the test that Allah showers us, is to make us a very strong person and value things that we have in front of us....Nabila herself is a fighter...She herself have her own strong will power...well its not easy for me thou to balance up myself with her moods, she have all sorts of deals and temper that really at times make me get confused what to do, here I will like to conveyed my sincere thanks to all her siblings who take turns to look after here during her stays in IJN.

My "sujud syukur" to Allah,as I believed every test or joy that Allah showers me, is an indication that Allah actually is so near to us and from this test makes us the family more closer to each other.....

NABILA you are always our precious pearl.....

My sincere gratitude to the almighty and to all......

2009-04-26T22:03:00.007+08:00

It has been quite a while I have not been blogging any feedback about my precious pearl....today is exactly a month after Nabila has undergone her open heart surgery ...simply because before the op the whole family especially me need to foresee a lot of preparation...

Prof. Dr Asma Omar, Paeds Specialist Cardiologist from University of Malaya Medical Centre, UMMC. a lady with a strong character but kind at heart. Twice she told me not much can be done for Nabila....Nabila has been her patient since 2nd day of birth till todate, close to 13 years now....after doing my own findings and without losing hope to see Nabila gets her corrective I went to see her again in June 2008, after a year lapse without doing anything, just witness Nabila goes on getting weaker and weaker, deep inside me was to see her get her strength like any normal child. I believe if we have faith Allah will lead us the way.....it just happen at the right moment Prof. referred Nabila's case to IJN.....and this picture was taken when Nabila had her 1st check up on the 4th June 2009 with Prof. Dr Asma, two months after her Open Heart operations. What else can i say to this lady, through Allah wills this lady have extended her truely and sincere heart to help Nabila....thank you prof. for making all the arrangement for Nabila. Thank you and may allah bless you.

This pictures was taken with the IJN Specialist Heart surgeon Mr KK Pau, Dr Rohana a HO/MO, Dr Rohana from Ipoh Hospital, Wad Mawar Nursing Manager and a staff nurse....two weeks after her major operations....nabila are able to move around......

In this picture Nabila with Mr Ahmad Khadri, the day he dropped by to see Nabila, is the day that he joined a new team...He was the one who have given us the full explaination process and the consequences that will happen during the operation, he is the 2nd surgeon assisting Mr KK Pau. Im glad he is one of them during the whole process going on....a stupid thing that I remembered telling him "Doctor please recite quranic verses when you want to do it to Nabila"....he replied "insyaallah puan, I will and thats what I always do... and thats the moment I can't control or hold back my tears"

The only picture that I have not able to take is with Dr Haifa, IJN Paeds Cardiologist, cute and pretty lady. I will get it taken later.

My sincere thanks to all of you IJN team and wad staff....(I will continue later).

HAPPY BIRTHDAY TO MS EVELYN CH'NG

2009-03-07T12:23:00.006+08:00

TO SOMEONE WHO HAVE WORKED AN EXTRA-MILES FOR THE NEEDS OF OTHERS - THANK YOU!

Dear Ms Evelyn Ch'ng happy birthday to you from All of us "Anna Raes" Family especially from Nabila....I believed you felt so touched when she wished you that morning right...she was so excited to pass you the card....all the way to Klang she kept on asking me to sing a birthday songs...thank you again....may you be blessed always.....

AGE IS JUST A NUMBER

Nabila's Diaries

2009-03-07T12:16:00.020+08:00

I created many event just for her....I need to balance and take things one at a time. In fact every end of each day, I will ensure to plan what next and next...I wanted to gave her the best and not forgetting to keep my faith to Allah.

I am careful in planning for her, planning for her means I also have to take care of my health....March 27th, 2009 needs everyone at home to be strong and healthy,at times I neglected them and make sure Nabila gets all the care and love...to my other children...sorry dear I just cannot cope...and yet I still want everyone to be happy...Most of the time I did my own healing conversation just focus and look forward....and even making the networking going....to ensure doa and prayers are being extended for Nabila's well being.

My sincere thanks to IDC/Ms Helen Sheibt and staff, Ms Evelyn Ch'ng for a well planned seminar.

My heartiest gratitude to Sekolah Rendah Seksyen 20, Shah Alam where Nabila attended her special education for almost 7 years, to the parents and teachers group, the headmistress, Puan Hjh Norsima Saari, all teachers especially the PPKI teachers and student for their kind effort doa and token given to Nabila's operations. May Allah bless all of you.

Thank you to Hjh Nasiyah, founder and a care taker of Rumah Qiraati, Taman Melawati in organising a "Khatam Quran and a special event of Doa Selamat for Nabila" at KTSN Global, Taman Melawati and thanks to Hjh Kiah for a lovely place extended for this function.

To Ms Evelyn for arranging a three days healing session for Nabila when the Taiwan healing group came to Malaysia. For those who wonder what treatment is this, according to David Herron "Healing is not the popular conception of removal of symptoms. Healing is to recover a greater experience of unity with the divine harmony, and our true selves. Healing is returning to a state of alignment with your Higher Self or true way of being". It is a western medical science that has made Healing be thought of as the removal of symptoms".

Nabila has received the treatment since November 2008, and thank you to Dato Yee, Ms Evelyn's brother in law for his time coming to the house and did the healing for Nabila.

For Nabila she seems to enjoy every moment that I schedule for her.....

Nabila Dairies

2009-02-18T19:37:00.008+08:00

Last Monday 16th Febuary 2009 was Nabila's follow-up dental check-up at UMMC....she had her dental orientation tour....

As usual she seems to be very cooperative...thank you to the staff nurse who actually able to make her listen and focus.....

Nabila if you ever have a bad tooth dear....there will no more teeth for you sayang....or else mama have to get you a false teeth hehe....

Caring and Sharing "Save Adik Nabila/PDK Mutiara Hati Ku" charity Talk

2009-02-17T10:24:00.017+08:00

Together We Can Make A Difference - 17th January 2009 (Wisma MCA, Jalan Ampang, KL)

First it was an idea that came from Ms Evelyn EL Ch'ng, JP and then the assistance and caring heart of Ms Helen Sheibt the General Director of SMI (M) Sdn Bhd to organised a one-day seminar "Creating Values In Your Child - Every Parent's Obligation" and without disregard of the race, gender, culture or any aspects Ms. Seibt believes her own affirmation in life and to others as "If you want RAINBOW, you got to put up the RAIN, To get what you never had, you must do what you have never done". Amongst the guest speakers who were present and contributed their time and effort for the charity seminar was :-
* AP Dr Rogayah A Razak - University Kebangsaan Malaysia (as the
master of ceremony of the day)
* Dr Norizan Razak (PhD) - Director, Urban Ethos Consultancy Group
* Ms Evelyn EL Ch’ng (PJK, JP) - Managing Director, C&P Ventures Sdn Bhd
* Hjh Bedah Razak - Nabila’s mother
* Mr Howard Khoo - Group CEO, Hing Yiap Knitting Ind. Bhd
* Ms Helen Seibt - Founder of IDC Group of Companies
(Hope to put their photos soon)
IZ (Ezuan Sulaini) a finalist from the reality show One In A Million made a special appearance and performance to entertain guests, it was truly touching to see Nabila inviting everyone to stand and clap their hands to IZ’s song entitled “Gonna Be Alright”

A famous dramatist/comedian Ms Angeline Tan also made a special appearance on stage interacting with IZ, who later invited Moe Nasrullah from Fly FM on stage.

To all whom have made it happened and attended the seminar especially Ms Evelyn EL Ch'ng, Ms Helen Sheibt and IDC Staff, Mr Howard Khoo, AP Dr Rogayah, Dr Norizan, Ms Angeline Tan, IZ Sulaini and Moe Nasrullah, members of the public, my family members (my siblings and in laws), Dato Ch'ng families, my ex-boss from ex-MAS Puan Noraishah Hashim, Biz Tag Group from Tagged "Virtual became reality)Puan Dib, Cik Ainee and Cik Aza, Ms Penny (Napoleon Hill, Malaysia and Help University faculty of Psychology.

My sincere gratitude to the almighty and thanks to all for the support in terms of donations and prayers (doa). Thank you and may god bless all of you with more abundance.

(Picture imported from Mossovi Model)

Nabila Diaries - Outing 1st Feb. before her pre dental op and during her admission for the op 4thfeb-7thfeb 2009.....she's a strong girl...

2009-02-07T22:00:00.060+08:00

A day out with her, and make her enjoys her favourite "chicken rice" at the food court in Section 13, Giant and window shopping at JJ, Bukit Raja is always her best choice...she likes window shopping, she will never demand for things but enjoys her outings....

unless she really craze about certain...she love coloring and not forgetting musics....will never miss to go to her favourite bookstore MPH and Popular's...

When I specify to all my children about window shopping, they knew there will be no purchase accept to have our quick "makan" at the food court. For nabila she will also abide with that rules....thats what i have trained them....buy when it is necessary...

At the end of each outing....she will still searching for a place to have her last bite...thats my nabila she will felt in-complete day without filling her tummy....for me to make her happy..to let and see her doing what she likes to do and to make her enjoys what the norm would do that is the most satisfying moment I would like her to have....patience in handling her its what the whole family will give....her siblings will never make her angry but always there to tolerates whats she wants...but definitely I am the one who have to control her, tell her how she should behave and how should she react....having her is the most precious moment that I will treasure.

I keep on repeating this....Never I regret having her in my life....I have learned a lot since the almighty entrusted Nabila in my care. I always visualize her having a normal life inspite having her own disabilities. The whole family, my hub and me and her siblings never put her aside in any of our outing and activities if possible we want her to be with us, unless she shows that she is not fit to come along....

This is a little secret why I want Nabila to be very independent and it could be a lesson to those mother whom have the same problem as I am, when Allah have choosen us to have this special bundle...in every way as a mother we should have to accept the fact that Allah wants us to take over his duty to look after our child...for me accepting her in the first place is not as easy thing to do...cursing and questioning is a normal scenario for any mom, than one day I asked myself if it is not ME who have to accept her who else....from there I put the fullest effort, read books, journals and internets, blogs and communicate with community all over the world....believe me I did not even join any of the association as I believe the only one who deserve to teach Nabila no other person only ME.

...that is my definite chief aim in making everything when smoothly in my daily process in seeing things falls at its own place....and now I am more proud to myself and love to share...I managed to tell my other children...what I have done for Nabila, taught her to be very independent and one day they cannot claim that Nabila will be a burden to them.....Nabila can take care of herself thou is not so perfect but at least she can handle mostly basic things herself....

I told my children no one can ever send her to the care of a welfare home if happen Allah take me first....I hope my other children gets my message clear.....I may sound demanding but I wish to let the norm and even people out there who happen to have special needs child and handicaps they still have their own needs....be more concern and care for them....for parents who have special needs children change your mindset....at one time I was harshly reminded by certain parents at one group meeting that I cannot take my Nabila experience and make other parents follow my techniques...I do agree we might not have the same problem but be more proactive with the needs and train our own special children the right way, never let go and aspect and demand the school, teachers and care taker to do for you....because at the end of the day YOU/ME is the one to handle the end process....this is very much neglected, may be no awareness....and even awareness from the public...special children and handicaps are not aliens and something so call a disease....at one occasion at a shopping mall, this mother pull away her son not to get near Nabila...for me as a straight person " I give a piece to this mother by saying this - You are very lucky to have a bundle that Allah have given you a perfect child...but at least I am more luckier to have my own since birth...but what will happen to you when you have a perfect normal child and suddenly Allah tested you - your son become handicap in a second due to a accident and sickness....well enough she show her madness to me but at least I have my piece to this people who is lack of awareness......gosh after that I told myself I need to do something.....and I am still thinking....

UMMC/UH here Nabila comes....4th Feb 2009, after all necessary admission done, Nabila have to do all the necessary procedures...she was asked by the Medical Officer to have her ECG and ECHO done, for Nabila I gather is just a norm check-up...I have been telling her for about a week, that she will be admitted to do her pre-dental op, that is the way how I have been using, continuous alerting, not only to her but also for her other siblings when they are a child....I believe in telling something or teach something we have to do it repeatable - to make things easy to understand. Now I'm preparing to tell her that she will have to undergo a major operations in March in IJN....to tell the truth when she sees logo of IJN, she will tell me "Jantung" means heart....

Look how relaxs she was, she have left her phobia and trauma long time ago, for her there is nothing to be afraid off and make her enjoy her journey in doing the routine procedures,that is what some of the medical student and HO commented...she is very cooperative and very alert on every instruction....alhamdulilah..

How she spent her day in the ward....she will not move around and disturb other patients, she will stay put as I told her not to move around and be at her bed....to make her not feeling bored, I always brought along her coloring gadget....she just do that and will just smile and wave her hand to other patients from where she is....

I told allah how thankful I am to have her, thou at times we do fight hehe when suddenly I make myself quiet she herself will say sorry and try to win my heart...at times she as ever became bossy...order me to do this and that....but I purposely ignore her and she understands that I am upset, she then will starts to hug me and kiss me....well at times it is not an easy thing to handle her....i will avoid making her angry, once I do she will never cooperate with me and starts saying she do not love me....she loves "babah" her father, who says this kind of child do not have feelings....patience...I learned a lot from her....

Without failed she will keep on asking me where is her father and siblings especially her little sister Nayli....Nayli used to bully her but one thing for sure her love for her sister is huge...will just cry silently...if Nayli took her things..

Amongst the siblings Nadia is the most she adores, once she saw Nadia, huhu mama becomes secondary...Nadia understands her well...Nadia is still studying in one of the local university in her 3rd year, one day Nadia told me if she ever have a chance to further her study abroad she wants to bring Nabila, well for me ever its a choice....she wants Nabila to feel the home of a special needs educations abroad....I agreed with her the special needs children gets the best attention and the way the people treats the special children very different to some here.

To make her forget her siblings and father, I will keep her busy with her coloring, it is a different environment now in UMMC(UH), I remembered the old building of paeds 1, 2, 3.... 12 years ago Nabila was warded at Paeds 2, a building for me a bit scary....but now with the new renovation done...with all centralised air-condition, alhamdulilah rather than the ceiling fan those days, syukur with the new look of UMMC and I always like the service randered since Nabila is 2 days old....I as ever will make friends and get to know the prof, doctors and staff....for the sake of Nabila....

6th Feb 2009, Nabila getting ready, to be pushed to the operations theatre....to be honest its sound simple procedure but for Nabila she has to do it thru GA and for a conginental heart disease patients' ever she is at risk....I have sleepless nite ever since I was told that she will have her heart operated. Please read my earlier post.....

I look very calm....but only Allah knows each time I have to face this moment...I look cool but deep in my heart I cried loud to Allah to give me strength to cope with all this. Nabila have gone 8 times of GA's and this coming March her 9th....with her condition...but I am visualizing her sweet smile everytime after each process...amin..

Seeing her been pushed to the Operating Theatre make my heart beats fast, waiting for her to be out from OT is a traumatic moment for me....but never I took it as a burden to me.....I make a promise to myself as long Allah give me my breath I will do anything for the sake of Nabila and my family and not forgetting to give back to the society once everything when well for Nabila.....insyaallah...as through the process I learn a lot of sharing and caring.....

I believe Allah have all for us....we can at one time be rich, be poor, have a wonderful family, have lots and lots of obstacles in our journey of life but each of us will have our own test but how each of us tackle and rectify each of the problem. How we use our accurate thinking to make a good choice, how we use faith and live our life in a way of using tolerance and most and above all always have our love to all and show our care.....

For me I have make a choice since I say I DO....this is the choice that I will carry out towards the end of my journey, to have balance in every situation and keep on learn, unlearn and relearn...take others mistake as an example and never make assumption to the good and the bad I come across....the golden rule is going to be my most and highest principles of my life...

QUOTES - I came across during my four days stay in the hospital....and wish to share with all viewers :

The test and be tested will always make a person strong, in reaching success - You can't win unless you know how to lose - Everything happens for a reason...There will come a time when you believe everything is finished. That will be the beginning....In life "If you have much, give your wealth. If you have little, give your HEART.......

~To my hub, my children our love will always be the beginning with no ends ~ Anna

Artikel Utusan Malaysia

2009-02-02T16:59:00.003+08:00

Misi kumpul dana pembedahan

KEDATANGAN bulan Mac ini dinantikan penuh debaran oleh Bedah Razak dan suaminya, Abdul Raes Abdul Razak kerana anak istimewa mereka, Nabila, bakal menjalani satu pembedahan besar yang cukup kritikal.

Bagaimanapun, sementara menanti tarikh itu sekali lagi dugaan menimpa apabila Abdul Raes tidak semena-mena diberhentikan kerja tanpa alasan kukuh.

"Sudahlah wang pembedahan masih tidak mencukupi, sekarang suami pula diberhentikan kerja. Buntu seketika saya dibuatnya.

"Namun, Tuhan Maha Kaya pada waktu inilah saya ditemukan dengan Evelyn C'hng iaitu seorang pelatih pemulihan profesional dan dia berkongsi misi dan visi yang sama dengan saya," ujarnya.

Kata Bedah, Evelyn yang bertanggungjawab melahirkan idea untuk melakukan seminar kebajikan, Save Adik Nabila yang berlangsung di Dewan Konvensyen di Wisma MCA, Jalan Ampang, baru-baru ini.

Di samping membincangkan mengenai cara-cara penjagaan terhadap anak sindrom down oleh para penceramah jemputan, seminar yang dianjurkan bersama SMI Malaysia, IDC Group of Companies dan juga kumpulan Hing Yap itu, turut diadakan bagi mengumpul dana untuk pembedahan Nabila.

"Saya bukanlah sombong, tetapi saya tidak mahu dipandang untuk meminta simpati, kalau boleh saya mahu orang yang memberi mendapat sesuatu daripada apa yang diberi, justeru idea untuk membuat seminar ini adalah satu cara yang paling baik," jelas Bedah.

Sumbangan yang dikumpul melalui seminar tersebut dapat menampung dua pertiga sahaja daripada jumlah sebenar kos pembedahan dan dapatlah dibayar untuk bayaran pendahuluan bagi pembedahan jantung terbuka untuk Nabila pada 27 Mac nanti.

"Segalanya telah diuruskan termasuk membayar pendahuluan sebanyak RM28,000 kepada pihak Institut Jantung Negara (IJN).

"Pada 23 Mac ini Nabila akan dimasukkan ke IJN, 25 Mac, doktor akan membuat cardiac care dan dua hari kemudian, pembedahan jantung terbuka PA Bending akan dilakukan.

"Saya amat berterima kasih kepada Evelyn, penganjur seminar, Helen Seibt dan semua penceramah, juruacara, tenaga kerja SMIMalaysia dan IDC Group of Companies serta artis jemputan yang dengan ikhlas menyumbang tenaga mereka.

"Tidak lupa kepada semua ahli keluarga yang telah bertungkus lumus menjual tiket seminar dan mendapatkan sumbangan peribadi daripada pihak individu," katanya.

Sementara itu, Evelyn yang turut serta sepanjang pertemuan itu berkata, untuk membantu sesama manusia tidak timbul persoalan tentang kaum, warna kulit, agama atau apa sahaja.

Beliau yang kini menjadi tenaga pengajar profesional untuk BNR Global, syarikat yang baru ditubuhkan oleh Bedah sejak sebulan lalu, terpanggil membantu Nabila setelah melihat sendiri apa yang dilalui oleh anak kecil itu.

Evelyn berkata, sebagai sahabat, beliau akan membantu sedaya mungkin termasuk menganjurkan seminar kebajikan Save Adik Nabila.

"Kami memilih tema We Can Make a Difference dengan harapan bahawa rakyat Malaysia sama-sama membantu untuk mewujudkan masyarakat penyayang dan prihatin," tambah Evelyn.

Kepada menghulurkan sumbangan kepada adik bolehlah dimasukkan ke dalam akaun Bank Simpanan Nasional : 10100-29-00034116-5.

Selamatkan Adik Nabila - Utusan Online

2009-02-02T16:09:00.009+08:00

KELUARGA

Nabila perlukan pembelaan

Oleh NOOR FAZRINA KAMAL

(bekas parut pembedahan demi pembedahan yang diharungi Nabila sejak dia kecil lagi).

BAIT-BAIT lagu Terlalu Istimewa dendangan Adibah Nor yang ditujukan khas kepada golongan kanak-kanak, mengimbau kenangan penulis saat pertemuan dengan seorang insan istimewa baru-baru ini. Ternyata, pertemuan itu telah membuka minda penulis seluas-luasnya tentang kanak-kanak istimewa yang mungkin selama banyak yang terlepas pandang.

Apa yang bakal anda baca selepas ini bukanlah sebuah epilog kisah duka masyarakat yang ingin meraih belas mahupun simpati. Tetapi ia sekadar mahu dijadikan inspirasi kepada ibu bapa di luar sana yang mungkin turut dilanda dilema sama.

Tanggal 14 Oktober 1996, sememangnya cukup bermakna kepada pasangan suami isteri, Bedah Razak dan Abdul Raes Abdul Razak dengan kelahiran cahaya mata kelima yang bakal menyerikan lagi rumah tangga mereka.

Seperti anak-anak lain, bayi yang diberi nama Nabila ditatang dengan penuh kasih sayang, malah perhatian yang diberi melebihi daripada kakak-kakaknya kerana anak ini cukup istimewa.

Pertemuan penulis dengan Nabila dan ibunya di kediaman mereka di Shah Alam, Selangor, baru-baru ini semata-mata untuk berkongsi pengalaman seorang ibu membesarkan anak yang bukan sahaja menghidap sindrom down malah turut disahkan menderita Atrioventricular Septal Defect (AVSD) iaitu penyakit jantung kongenital kompleks.

Mengimbas kembali saat-saat sebelum melahirkan Nabila, pakar ginekologi telah memaklumkan bahawa kandungan Bedah abnormal. Ia berdasarkan kandungan air ketuban yang melebihi jumlah sepatutnya pada saat kandungannya berusia 38 minggu iaitu dua minggu sebelum tarikh kelahiran.

"Apabila doktor memberitahu saya tentang perkara tersebut. (kandungan abnormal) hati saya menafikannya dan memberontak mengatakan bahawa doktor bukan Tuhan untuk menentukan segalanya.

"Tapi pada masa sama, saya meluahkan segalanya pada Allah dan melakukan ibadah seperti solat hajat dan istikharah supaya diberi kekuatan untuk menempuhi dugaan yang mendatang," jelas ibu tabah ini.

Sejak itu juga Bedah mula berubah perwatakan daripada seorang yang ceria dan peramah kepada seorang yang murung dan menyendiri. Malah suaminya turut tidak dimaklumkan tentang keadaan tersebut.

"Sewaktu di pejabat, saya mula hilang minat untuk bersama dengan rakan-rakan menikmati makan tengah hari. Masa rehat saya di pejabat dihabiskan dengan memikirkan apakah yang perlu dilakukan apabila menerima anugerah Tuhan yang istimewa itu kelak," jelas wanita berusia 46 tahun itu.

Sehinggalah tujuh hari sebelum tarikh jangkaan bersalin, Bedah didatangi majikan yang mengambil kesempatan bersembang dengannya pada waktu rehat.

"Entah kenapa, saya boleh duduk bersembang dengannya dan dia bercerita perihal keluarga termasuk cerita abang iparnya yang merupakan seorang pakar bedah kanak-kanak. Tapi pada waktu itu saya hanya mendengar tanpa meluahkan tentang kesusahan hati saya," kata Bedah yang ketika itu bertugas sebagai penyelia di Jabatan Sumber Manusia di sebuah syarikat penerbangan.

Sebagaimana ramalan doktor, bayi yang dilahirkannya mempunyai gejala-gejala sindrom down, tetapi lebih menyedihkan bayi tersebut turut mengalami masalah tiada bukaan lubang dubur mengakibatkan perutnya membuncit kerana angin dan najis yang terkumpul di dalam usus.

"Saat itu saya tidak menangis namun terus memikirkan apa yang boleh dilakukan pada bayi yang baru hendak melihat dunia ini. Pada hari kedua dilahirkan, Nabila dipindahkan ke Pusat Perubatan Universiti Malaya untuk menjalani pembedahan colostomy ke atas ususnya," imbas Bedah pada kisah yang berlaku 13 tahun lalu.

Dugaan Bedah tidak terhenti di situ, tiga minggu selepas pembedahan membentuk lubang dubur, dia dikhabarkan lagi oleh doktor bahawa bayi turut menghidap penyakit jantung kongenital atau jantung berlubang. Lebih teruk lubang itu berada di bahagian tengah yang melibatkan semua injap.

"Dalam kebingungan menerima satu demi satu berita buruk, saya teringat pakar bedah kanak-kanak yang disebut oleh bos saya dalam perbualan kami tidak lama dulu.

"Setelah berusaha, kami berjaya mendapatkan khidmat kepakarannya. Dari situ Nabila mula menjalani siri pembedahan jantung seawal usianya tujuh bulan lagi. Kalau nak dikira, sejak lahir hingga sekarang dia sudah lima kali keluar masuk bilik bedah.

"Alhamdulillah, setiap kali pembedahan Nabila pulih dengan cepat dan saya anggap ia seperti satu keajaiban daripada Allah," katanya.

Namun, episod pembedahan Nabila belum berakhir kerana pada 27 Mac ini dia dijadual menjalani satu lagi pembedahan paling penting di mana doktor pakar di Institut Jantung Negara (IJN) akan melakukan pembedahan PA Bending untuk menutup empat lubang di injap jantungnya.

"Pembedahan itu perlu kerana ketika usianya 10 tahun dia mengalami serangan jantung yang pertama. Sejak itu dia tidak boleh terlalu aktif seperti naik turun tangga, susah bernafas dan mulut serta kuku menjadi kebiruan secara tiba-tiba.

Apa yang nyata, dugaan demi dugaan yang melanda sedikit pun tidak melumpuhkan semangat Bedah. Bahkan dia bertekad, selagi mampu, perjuangannya akan tetap diteruskan demi Nabila juga anak-anak yang lain.

Nabila di mata keluarga

Bedah mengakui, anak-anak istimewa merupakan anugerah Tuhan yang paling mencabar untuk semua ibu bapa.

"Layanan saya terhadap Nabila tidak pernah berbeza, saya tidak memencilkan dia malah membawa dia ke mana sahaja kami sekeluarga pergi. Nabila juga seorang anak yang bijak kerana boleh mengadaptasi apa yang diajar dengan baik," katanya.

Malah menurut Bedah, Nabila boleh memasak nasi dengan baik dan berkebolehan membancuh teh.

"Nabila memang manja dengan kakak-kakaknya terutama kakak keduanya, Nadia, sehinggakan makan pun bersuap. Selain itu Nabila memang pandai mengambil hati setiap ahli keluarga, pendek kata dia mempunyai perasaan yang peka dan sensitif dengan apa yang berlaku di kalangan ahli keluarga," kata wanita berkulit cerah ini.

Mengakui apa yang dikatakan oleh Bedah, penulis turut kagum dengan aksi spontan Nabila yang bijak mengatur meja untuk hidangan petang bagi tetamu yang datang.

Selain Nadia, 21, Nabila mempunyai tiga lagi kakak, Nadira, 23, Natrah, 19, Nur Diana, 15 dan seorang adik, Nur Naylli, 6.

Nabila yang pandai mewarna dengan baik, kini bersekolah di kelas pendidikan khas di Sekolah Kebangsaan Seksyen 20, Shah Alam.

"Setiap kali habis kelas, Nabila pasti akan masuk ke semua bilik darjah untuk bersalaman dengan guru, sebab itu dia sangat disayangi oleh guru-gurunya.

Ketika saya memberitahu guru-gurunya bahawa Nabila akan menjalani pembedahan besar Mac ini, ada yang menitiskan air mata dan berdoa agar pembedahan tersebut berjaya," tambah Bedah.

Ketika Pengorbanan Menjadi Harapan - Robby Andoyo

2009-01-27T09:13:00.010+08:00

Saat kurenungi makna hidup manusia di Dunia ini
Ku menerawang akan pentingnya pengorbanan diri
Ketika Kuberfikir bahwa segalanya tak ada yg abadi
Ku teguhkan langkah mencari ketenangan hakiki

Harapan adalah Pengorbanan melalui ketulusan
Karna ia menjadi amanah yang di perhitungkan
Tabahkan hati saat menghadapi segala cobaan
Karna cobaan akan berganti dengan kebahagiaan

Setiap manusia memiliki kecenderungan dalam hidupnya
Kecenderungan yg bermula dari harapan segenap jiwanya
Bila keistiqomahan menyatu dalam aliran darah manusia
Segala harapannya akan menjadi kenyataan yg tak sia-sia

Keikhlasan dalam setiap pengorbanan ibarat mata air
Senantiasa menjadi harapan bagi para-para musafir
Kesuksesan adalah proses terbaik bukanlah hasil akhir
Sebagaimana manusia dituntut untuk selalu berfikir

Alhamdulillah.... ketika menyambut hari jadi Nabila yang ke 13(14hb Oktober 2009) , dengan keadaan jantungnya yang telah di baik pulih.... harapan agar pengalaman ini dapat di jadikan contoh kepada semua ibubapa yang mempunyai anak-anak istimewa bahawa Allah berikan anugerah yang bernilai untuk kita sama-sama berusaha kerana setiap kejadian itu bersebab.....amin.

"Caring and Sharing" its more to Empathy and not Sympathy

2009-01-26T00:51:00.007+08:00

When i accepted Ms Evelyn's idea and suggestion to have a caring and sharing seminar to collect some funds for nabila's operations, it is an in prompt to decision that I have made. I have accepted it because of a reason that a seminar are given and in return the participants gain knowledge and the payment for the seminar proceeds to nabila's pre n post operation and also to PDK Mutiara Hati Ku.

I remembered that was in August where i told Ms E of my financial constraints, where i have no longer have savings and my husband still do not have a permanent job..because of his pending case with industrial court...he only gets a bit of allowance as a consultant as and when there is a job with a start-up cargo aviation company. I have resigned from my job since Nabila starts her special class and from home i do a freelance reseller to market training, I need to be around home and be ensured that my distance are around Klang valley and if need be out of shah alam i have to make sure Nabila have someone to look after either it must be during school holidays or semesters break for her siblings to take care of her if I'm not around...most is 2 or 3 days not more than that, Nabila will miss me and due to this she will have a mild attacked...as a mother I have done tremendously for everyone in the family, because of the needs I have to balance up in whatever I want, but never I will stop and not easily giving up in achieving my aim....

With the expense of having a special need care for nabila and also have five more daughters still studying and we have not been so lavish with our daily expenses, everything needs should be handled in a thrifty way of leaving...but my visualization always says that, it is not permanent...the time will come we will get back what we once had...it is a matter of doing thing persistently and I believe Allah will help us.

My siblings they have shown their concerns but how long i can depend on them, they also have their own responsibilities to their own families....yes they did help but I just can't depend on them. Before doing the reseller marketer, I was in the multi-level marketing, I did very well but when nabila started to have series of attacked I decided to stop its a choice that I have made to be with my daughter...the savings from the three years MLM has worn out since last year April. The impact was much greater when last month I received a court order to go on a bankruptcy. There is nothing for me to be ashamed off when I say this, I believe I am not the only one who suffers this, it is facts, not that I purposely want that to happen, I have a choice to make and I have decided to stay at home to look after nabila, I did not purposely trying to runaway from the debts that not even RM50k and to be called a bankruptcy.

When PPUM suggested nabila case to be transferred to IJN pretty well I am aware and my mind start thinking where can I find enough cash, as it is, now my expenses is always over the budget. For many I might not be the right person to be helped, for many I might have siblings who can afford to help me but when I accepted the caring and sharing event for nabila on 17 January 2009 it is not seeking for sympathies, it was done because of empathy, the talk was organised very professionally by SMI/IDC and Hiap Ying Industries, why help this lady???? there are many others who are more suitable to receive.... some may say...for me because Allah have selected Nabila to get the empathy from this people. I thank the organiser Ms Helen Seibt and all her staff, Mr Howard, Ms Evelyn E L Ch'ng, Dr Rogayah and Dr Norizan who have ask their circle of contacts to contribute and even volunteered to be the guest speakers with an excellence topics presented on that day. Not forgetting IZ OIAM, whom have passion in giving his voice and song for a charitable needs since he was in his early days in university and to all who have contributed may god bless you all and all my siblings and my hub's siblings who always there to give me a morale support and assistance since my moment of difficulties.

I thanked Allah with this superb people i have met and have, I have learned a lot from this event, commitment, sincerity, values and honesty....the time will come when my turn to give and it is not necessary to the same person that have help me or vice visa but to others when everything "gonna be alright" for me and I know it won't be long, Insyaallah....with the 1/3 fundings I will make payment to IJN, my next step is to find my way to "Pusat Zakat" and also an appeal to IJN as I believe I have a concrete reason to ask for waiver on behalf of Nabila and with my financial constraints, may be to others I don't but today I realise if you have values and honesty then Allah will help and make things easier...this is a major operation and I hope it will be the last for my precious one, one operation with two correctives...but I keep on visualizing her smile after the op as Allah are giving me and hub a test through her...may Allah lead me to the right and straight path....amin.

"The Five Pillars of Islam".
""One of the most important principles of Islam is that all things belong to God, and that wealth is therefore held by human beings in trust. The word zakat means both 'purification' and 'growth'. Our possessions are purified by setting aside a proportion for those in need, and, like the pruning of plants, this cutting back balances and encourages new growth. The Prophet said: 'Charity is a necessity for every Muslim.' He was asked: 'What if a person has nothing?' The Prophet replied: 'He should work with his own hands for his benefit and then give something out of such earnings in charity.' The Companions asked: "What if he is not able to work?' The Prophet said: 'He should help poor and needy persons.' The companions further asked: 'What if he cannot do even that?' The Prophet said 'He should urge others to do good.' The Companions said 'What if he lacks that also?' The Prophet said 'He should check himself from doing evil. That is also charity.'"

Wallahualam...(Thank you Allah, let me have my share of giving in return to what I have been receiving from this people that I have met....I believe there is a reason to what had happened.)

A four hours spent at media prima tq NTV7

2009-01-25T12:46:00.012+08:00

As early as 6.15am on 22 January, nabila and I made our way to media prima at Bandar Utama for the breakfast show at NTV7, thanks for cik fauziah of pr media and cik sheila producer of TBS....thank you for giving us the slot, though theres a lot to share, it seems the channel are more focusing on the OBAMA's presidentary moments....

She has ever craze about any musical or entertainment show gets her very excited...when we about to turn in she saw TV3 signage...and starts to tell "mama mama tu tu" and TV3 is always her favourite channel besides TV9.

She call Ms Evelyn E L Ch'ng as "Aunty aunty" the person who has muted the event "Save Adik Nabila Caring and Sharing Event on 17 January 2009 at Wisma MCA. For Nabila she has treated this lady as part of the family so do all of us.....

Always love posing infront of camera like an artist hehe not you E, i mean nabila....

Nevertheless i will always treasure this moment, its a precious moment of my life having nabila.....Elgelbert Hamperdick song "SHE" will always potrays her as SHE is the reason for me to survive.....

This is one of her favourite artist IZ Sulaini with his song "GOONA BE ALRIGHT", Iz has shown many people at the "Caring and Sharing Event" that his voice is part of his aim to charitable effort for the needy....Well done IZ, apart Iz, nabila always like sheila OIAM, Ayu OIAM....

Hey what about Faizal Tahir...i remembered I brought Nabila for a movie "Waris Jari Hantu" where the song sang by Faizal Tahir was in the movie, thats how nabila likes the song and a fan's of Faizal Tahir's silently and seems Nabila was so lucky when i brought her to media prima faizal too have his slot with Hot FM and seems very lucky whilst having breakfast after the show we saw faizal tahir...everything that i do ....not denying i do love music and entertainment myself, thats how nabila also have that haha....i managed to ask permission from the guard there to take photo of nabila n him....thats her with her shy look...thank you faizal...as i do this for my precious nabila....thank you allah for such a wonderful journey...alhamdulilah

Nabila's Diaries when she's an infant......."The Two Words" that has made us strong...

2009-01-25T08:15:00.008+08:00

Two Words
by Cheryl Ward

Your birth brought us closer
As death lingered near
Your strength as you struggled
Gave flight to our fear
Down Syndrome they whispered
on the day after your birth
Two words that portrayed
A false image of your worth

Those words did not tell us
Of the love you would bring
Or the power your smile has
To make our hearts sing
Down Syndrome didn't tell us
What kind of child you would be
Filled with amazing surprises
Shared with your father and me
Hard work, determination,
Teaching and learning, it's true

Down Syndrome means much of this
For each of us, not just you
Wonder child, spirited child
You've grown and you've thrived
Your every achievement
Still fills us with pride

No matter the voice used
Two words can't describe
The fullness you've added
To so many lives
Down Syndrome, those frightening words
Whispered so long ago
Never did they prepare me
For the person I now know.

Kosmo - 23hb Januari 2009

2009-01-24T21:41:00.008+08:00

Miliki kekuatan luar biasa( http://www.kosmo.com.my/kosmo/arkib.asp?y=2009&dt=0123&pub=Kosmo&sec=Pesona&pg=ps_01.htm)

Apakah perasaan anda apabila doktor mengesahkan bayi yang sedang dikandung akan lahir sebagai seorang yang tidak sempurna mental dan fizikalnya? Wartawan FATEN SAPHILLA MOHAMED ISA menyelami perasaan seorang ibu yang mempunyai anak sindrom down.

APABILA doktor mengesahkan Bedah Abdul mengandung, dia begitu teruja. Walaupun dia telah mempunyai empat orang anak, tetapi kehamilan kali ini dirasakan agak berbeza.

Keterujaan itu ada sebabnya. Ini kerana keempat-empat anak yang dilahirkan sebelum itu ialah anak perempuan. Jadi, doa dipanjatkan agar kehamilan kali ini dikurniakan seorang anak lelaki. Namun, harapan Bedah musnah tatkala mendapat perkhabaran dari doktor menjelang dua minggu detik kelahiran anak kelimanya.

Doktor mendapati anak yang bakal dilahirkan bukanlah seperti kanak-kanak biasa. Dia bakal mendapat anak perempuan sindrom down.

"Masa itu, saya sedih sangat. Keadaan rumah tangga tidak berapa baik sebab masing-masing dalam keadaan tertekan. Saya menjadi murung dan pendiam. Setiap malam, saya buat sembahyang hajat minta petunjuk daripada Allah,"

"Akhirnya, saya reda. Mungkin Tuhan hendak menguji saya. Kita hanya merancang, tetapi Tuhan yang menentukan segalanya. Saya terima apa saja yang dikurniakan Tuhan," katanya kepada wartawan Kosmo! ketika ditemui di rumahnya di Seksyen 19, Shah Alam, Selangor baru-baru ini.

Umum mengetahui, kanak-kanak sindrom down mempunyai wajah hampir serupa walaupun dilahirkan daripada ibu berbangsa India, Cina, Melayu dan lain-lain bangsa di dunia.

Kanak-kanak sindrom down biasanya lebih berisiko tinggi untuk mendapat penyakit jantung berbanding dengan kanak-kanak biasa. Mereka juga bakal berdepan dengan pelbagai penyakit lain. Malah, jangka hayat mereka juga tidak lama.

Bedah memberitahu, selepas hari kedua kelahiran, anaknya terpaksa dibedah kerana doktor mendapati saluran membuang najisnya tertutup (tidak mempunyai dubur). Keadaan menjadi semakin kritikal, kerana perut anaknya semakin membesar akibat gas terkumpul di dalam perut. Ini mengakibatkan najis keluar melalui saluran lain iaitu mulut.

"Doktor terpaksa melakukan pembedahan colostomy iaitu membuat saluran dubur," katanya.

Pembedahan colostomy dibuat bagi membolehkan najis terkumpul dikeluarkan. Melalui colostomy, perut kanak-kanak itu akan ditebuk dan dipasang beg khas sebagai saluran membuang najis.

Menurut Bedah, selepas tiga minggu anak yang diberi nama Nabila itu dilahirkan, dia dijangkiti pula dengan penyakit jantung kongenital. Malah, setiap injap jantungnya berlubang termasuklah injap utama. Ini memaksa doktor melakukan pembedahan kali ketiga ke atas Nabila.

Keadaan Nabila yang seperti nyawa dihujung tanduk menyebabkan Bedah banyak menghabiskan masa di hospital. Keadaan itu juga menyebabkan Bedah terpaksa berhenti kerja sebagai Eksekutif Sumber Manusia di sebuah syarikat penerbangan bagi menumpukan sepenuh masa kepada Nabila.

"Pada masa itu, anak saya lebih penting daripada pekerjaan. Pada mulanya, saya fikir tindakan saya berhenti kerja bakal menghadapi masalah dari segi kos perubatan Nabila nanti. Namun kata suami, dia bekerja dan mampu menyara keluarga termasuk menanggung kos perubatan Nabila," kata ibu kepada enam orang anak perempuan itu. Selepas Nabila, Bedah melahirkan anak keenam, juga seorang perempuan.

Bedah memberitahu, keadaan Nabila ketika itu kritikal dan doktor mengesahkan berkemungkinan anaknya tidak dapat bertahan lama. Namun, keadaan sebaliknya berlaku.

"Nabila selamat selepas menjalani pembedahan. Doktor beritahu kanak-kanak ini (Nabila) mempunyai kekuatan luar biasa," katanya yang menceritakan detik cemas tersebut.

Kini, Nabila sudah mencecah umur 13 tahun. Bagaimanapun, pembedahan kali keenam perlu dihadapinya pada 27 Mac ini. Ini kerana, doktor mengenal pasti beberapa kecacatan baru pada jantungnya dan pembedahan untuk membetulkannya adalah penting.

Namun begitu, Bedah menghadapi tekanan kerana kos pembedahan Nabila dijangka mencecah RM40,000. Suami Bedah pula, kini menghadapi masalah dalam pekerjaan sekali gus membuatkan keluarga itu dalam dilema.

Tekanan yang berulangkali dihadapi menyebabkan Bedah terlantar sakit. Doktor mengesahkan Bedah mengalami kekurangan darah dan menasihatkannya untuk banyak berehat.

"Ketika saya sakit, apa yang mengharukan saya ialah Nabila sendiri yang menjaga saya. Memicit kepala saya, malah menghantar makanan kepada saya," katanya bercerita tentang anak istimewanya itu.

Selain Nabila, Bedah mempunyai lima lagi anak perempuan iaitu Nadirah, 23, yang sedang menuntut di Universiti Islam Antarabangsa Malaysia dalam bidang Sains Politik; Nadia, 21, juga menuntut di universiti yang sama dalam bidang Kewangan; Natrah, 19, kini menuntut di Kolej Universiti Teknologi dan Pengurusan Malaysia; Noor Diana, 15, belajar di Sekolah Menengah Seksyen 9, Shah Alam dan anak bongsunya, Noor Nayli, 6.

Apabila diminta menceritakan keistimewaan Nabila, dengan senyuman terukir pada wajahnya, dia memberitahu Nabila merupakan seorang kanak-kanak yang aktif.

Menurutnya, Nabila suka membantunya ketika di dapur. Sama ada memotong sayur atau mengukur sukatan beras untuk dimasak, Nabila boleh melakukannya sendiri.

"Walaupun dia macam itu (kanak-kanak istimewa), dia pandai membuat kerja dapur. Saya tidak pernah memaksanya. Dia sendiri bersemangat menolong saya. Dia juga suka bergambar dan pandai bergaya di depan kamera," ujarnya lagi.

Kali pertama penulis berjumpa Nabila di rumahnya, Nabila sendiri membuka pintu sambil memberitahu, emaknya pergi ke kedai sekejap.

Kemudian, dia menepuk-nepuk kerusi sambil mempelawa saya duduk. Terdetik di hati saya betapa sopan kanak-kanak ini. Sambil menjamu selera berlaukkan ayam masak merah, mulutnya rancak bercerita mengenai drama yang ditontonnya.

Apabila emaknya pulang dengan membawa beg plastik berisi roti dan kek, dia terus mendapatkan emaknya sambil berkata: "mama ni cantiklah".

Mengakhir perbualan, Bedah berkata, walaupun sukar dia menjaga Nabila, namun rezeki sentiasa ada. Malah semasa dia menghadapi masalah kewangan, muncul Evelyn E. L. Ch'ng yang kini menjadi teman baik serta rakan kongsi dalam syarikat yang diusahakan Bedah dan suami.

Menurutnya, dia bertemu dengan Evelyn ketika mengikuti salah satu program motivasi. Bedah mengikuti program itu untuk menaikkan semangat dan kekuatan diri kepada sesiapa sahaja yang menghadapi masalah.

Antara pertolongan Evelyn ialah membantunya mengadakan seminar 'Selamatkan Adik Nabila' bagi mengutip dana untuk Nabila. Seminar itu telah diadakan pada 17 Januari lalu dan berjaya mengumpul sumbangan sehingga RM25,000.

Bagi mereka yang mahu menyumbang untuk membiayai kos pembedahan Nabila, bolehlah menghubungi Bedah di talian 019-3618 983 atau Evelyn (012-2018 739).

2009-01-24T21:32:00.000+08:00

THE CHARITY DRIVE IS ON !!! 17 JANUARY 2009

2008-12-06T09:34:00.009+08:00

“SAVE-ADIK NABILA/PDK MUTIARA HATIKU” CHARITY TALK
“INSTILLING VALUES IN YOUR CHILD – EVERY PARENT’S OBLIGATION”

DATE : 17th January 2009 (Saturday)
TIME : 9.00am – 5.15pm
VENUE : Wisma MCA Convention Hall, Jalan Ampang, Kuala Lumpur

TARGETTED AUDIENCE :  Parents
 Teachers/Educators
 Administrators

PARTICIPATION FEE : RM120-00 per participant (Entire proceeds will
be donated to “Save-Adik Nabila” Fund and PDK
Mutiara Hatiku Children’s Home)

MASTER OF CEREMONY : Dr. Rogayah A. Razak, PhD., Associate Professor,
Dept of Audiology & Speech Sciences, Faculty of
Allied Health Sciences, UKM

PROGRAMME
9.00am – 9.45am : Registration of Participants
9.45am – 10.45am : “Important Aspects of Child Development & Proactive
Parenting”
Guest Speaker – Dr. Norizan, PhD
Director & Consulting Linquist - Urbane Ethos
Consultancy Group
10.45am – 11.45am : “Raising Children - Perspective of a Single Mum”
Guest Speaker – Ms. Evelyn EL Ch’ng PJK., JP
Managing Director – C&P Ventures Sdn Berhad
11.45am – 12.15pm : “Nurturing a Child with Special Needs - A Mother’s
Perspective”
Guest Speaker - Hajjah Bedah Rajak
BNR Global
Mother of Nabila bte Abdul Raes
12.15pm – 12.30pm : Performance by IZ OIAM – “Gonna Be Alright”
12.30pm – 1.00pm : Press Conference
12.00pm – 2.00pm : LUNCH & VISIT OF SPONSORS’ BOOTHS
2.00pm – 3.00pm : “Shuffling Family, Work & Play”
Guest Speaker – Mr. Howard Khoo – Group CEO,
Hing Yiap Knitting Industries Berhad
3.00pm – 3.30pm : BREAK
3,30pm – 4.30pm : “Attitude is Everything”
Guest Speaker – Ms. Helen Sheibt
Founder – IDC Group of Companies
4.30pm – 5.15pm : Forum Panelists and Q&A Session

REGISTRATION : Kindly call "SMI Sdn Bhd"
Tel : 60-(3) 79565126/5139
Hp : 012-6536340

DONATION AND CHARITY DRIVE POSTPONED

2008-11-11T20:20:00.002+08:00

Dear All....The donation and charity drive that supposed to be held on the 22nd November 2008 has been postponed to a later date. This is due to no sponsor of venue. Lets pray that there will be someone or any organisation who are willing to sponsor this event.....
SAVE ADIK NABILA/PDK MUTIARA HATIKU CHARITY DRIVE

How wonderful Allah Creations

2008-11-10T12:15:00.004+08:00

Never the ending....its always the beginning....at the beginning its a PAUSE and now is such a welcoming to have her in our lifes,Nabila my precious pearl....

She's the every reason for me to survive...i have learned a lot from her. Thank you to the creator for such a wonderful bundle of joy. Her approach is so genuine, joyful, caring and loving. For others she have so much to overcome....for me she is the most precious gift that Allah have given me....

My only hope is to share what we have learned from her, her ability in her own way to others....I believe everything that happens with a reason...its hidden and its up to us to look through and learned from it...

Nabila will always have her way through life and insyaallah with the help of the Almighty she will make it through her heart operations in March 2009, whoever reads this page.....please extend your prayer to her well-being and I am visualizing her smiling face after the ops....May Allah bless Nabila....my precious pearl of my life....

SHE is the reason for me to survive.....My Precious Nabila

2008-11-08T10:32:00.006+08:00

Look at her at her age of 12th she has shown a tremendous improvement to herself....she herself have taught us members of the family to appreciate what allah have given us....she always watched what we are doing and she will follow when she thinks she wants to try....at her age with the special unique self, she have cooked rice well several occasions....she have make tea for the family as early as 6.45am in the morning, she will ensure she will take her father's briefcase every morning into the car...she will collect laundry from each of her siblings....she will ensure that the shoes and slippers are kept in line on the shoe rack, she at times will sweep the floor do as what the daily maid do, she will do all this without being told....i myself did not demand her to do so and i myself did not stop her of doing it...what at times i afraid off is at times accident could occur....thats the reason i have to hide the house keys, the car keys, the wires and plugs to the kettle, the rice cooker, remove the gas hose...when she saw that she will start showing her anger and start scolding who ever near her....now every Sunday i will let her help me in the kitchen she will cut vegetables better than i am...she washes the dishes sparking better than the other siblings....If she goes to school her routine task when the school session ends she will go to every class to look for teachers, she hugs,shake hand and say thank you to them, she will do it without failed everyday if she is not sick....i only taught her to show respects but i did not remember to ask her to do it every day.....with the love that all of us shower her, treat her as normal as possible...I told myself alhamdulilah with the good examples that i and others in the family have showed to her since she was toddler...my precious pearl have shown a tremendous improvement day by day....I love you "my precious pearl"

I STILL HAVE A LOT TO LEARN

2008-11-08T09:48:00.004+08:00

Hye its been quite a while i did not write....being busy with my daily routine things and i realized that i must make an effort to write.....i realize excuses make a person no where in life....words without action ends us nothing......then with the precious pearl that allah gave me....i have the process of keep myself learn, unlearn and relearn always......
I've learned that no matter what happens, or how bad it seems today, life does go on, and it may be better tomorrow. I've learned that you can tell a lot about a person by the way he/she handles a rainy day and lost luggage. I've learned that regardless of your relationship with your parents, you'll miss them when they're gone from your life. I've learned that making a "living" is not the same thing as making a "life." I've learned that life sometimes gives you a second chance. I've learned that you shouldn't go through life with a catcher's mitt on both hands. You need to be able to throw something back. I've learned that whenever I decide something with an open heart, I usually make the right decision. I've learned that even when I have pains, I don't have to be one. I've learned that every day you should reach out and touch someone. People love that human touch - holding hands, a warm hug, or just a friendly pat on the back. I've learned 'that I still have a lot to learn.

DOWN SYNDROME AWARENESS MONTH

2008-10-27T12:59:00.000+08:00

I'm not aware that this month is a Down's month until i visited Bridget's page....i guess i will visit her page often....

Having Faith - Nabila My Precious Pearl

2008-10-26T11:13:00.000+08:00

Never regret of having her...."syukur" to allah giving me faith and strength to carry on with this bundle of joy...born in October 14th 1996, i remembered how allah have guided me 2 weeks before her birth i was told that i might have an abnormal child....alhamdulilah i turned myself to Allah....sholat hajat, taubat and istikharah are my weapon to seek patience....believed me a week passed, whilst sitting alone during lunch, my ex-manager, Puan Noraishah Tan Sri Hashim (the late judge daughter) came and asked if its ok to joined me, for me to be honest i always tried to avoid having lunch with others thats the character each time i got myself pregnant. Thanks to allah for that moment, for his guidance...Puan Noraisha starts telling me about her family and suddenly she told me about his brother in law (Prof Aljafri) who happened to be the Head of Surgery of Peads ward, funny thing was i just listened closely every information that she told me.....Nobody knows about what my gynea had told me not even my hubby, i guessed as much my colleague felt my obvious changes yup very quiet and thats the reason why i think my ex-manager accompany me, or may be thats the result of my istikharah....alhamdulilah. 14 October 1996 morning, the alarm of having my labour started, as usual im a person will not getting myself in a panic mood called my hubby, he forever very committed with work, in the car i told him to be at my side don't leave me until the baby delivered....slowly i told him if ever things does not appeared to be what expected, be patience and accept it as allah tests....and of cause his forgiveness that i want for an easy delivery....he as ever will joke and said the day that he married me he has accepted me for what i am....forgive and forget...thats him until today....i luv him for that.....Believed me when they pushed me in the labour room, only one nurse and a midwife were there, my gynea happened not to be around...according to the midwife he will reached in time, still have time she told me.....not even half an hour i had a terrible pain and as normal i will start recite verses especially "ayat kursi", the midwife and the nurse noticed and i told them its time for me to deliver....they asked me to hold i said i can't....im so lucky the midwife was fast enough and i delivered nabila without my gynea....imagined from past experienced they usually will put the baby on my chest but this time after another gynea came they took away nabila without saying anything....my hubby was outside when i delivered nabila....i knew allah wants me to have the tests...my hubby tried not to show any expression....i kept on asking where is nabila.....till i was transfered to my room....then the paeds doctor came and told me to accept what allah have given me....not a single tears came out from my eyes when the doctor told me.....dear allah thank you for giving me the strength to accept her and show me the path to be strong....2 hours later the paeds doctor came and told us that nabila conditions are not stable and the cost at the hospital will be high and told me it is advisable to transfer her to the government hospital and thats where i remembered what my ex-manager had told me and i asked my hubby to call her and told about nabila....alhamdulilah the next morning nabila was transfered and that afternoon they had to do a colostomy op for her or else nabila cannot be safe.......for me that the first time i put aside my confinement period....two weeks later once again i was told that nabila suffers from a chronic heart disease "AV Canal Defect - in a centre of the chamber theres a hole".....this time i can't control myself anymore i cried and cried, until a nurse came and comforted me and the next morning she gave me a book "You light up my life" can't remember the author name, about a couple who happened to have a son "a down's child with a congenital heart" i realised that i have to be strong and I have to be sure im healthy to look after nabila, i have 4 more children to look after and thats the important reason i kept on and have to face the fact that i must be strong and have faith.....within 8 months nabila have undergone 5 operations and suprisingly, thou she had a heart disease she recovered fast in every series of ops,...thats miracle....miracle if we have strong believes that every test that allah wants us to face actually teaches us a lesson....alhamdulilah no doubt every month she suffers a bad bronchitis and the whole family hardly leave a norm life, as in and out hospital is just a routine task for 2 years....i was lucky that i was granted a no paid leave......they predicted that she can only leave the most 12 years and i have gone to two other private hospital and the answered to it let nabila go naturally.....she got her first attack in July 2005 and thats the time i make a promise to myself not to give up hope and i believe that there must be high technology invented by then, alhamdulilah when i went to see Prof Asma last June she recommended to refer nabila to IJN.....and this time they accepted Nabila's case and how thankful i am and i believed if we have faith in whatever we do allah will grant us....ask you will be given.....23th March 2009, nabila will be admitted, 25th March a cardiac cath will be done and 27th March 2009, nabila will be operated with two corrective, one the PA Banding replacement and two the corrective of the 4 holes, according to the surgeon we have to know its a high risk op and no guarantee but i have prepared for me what i do is what allah wants me to do....for me "doa and tawakal" and to all my families, friends and viewers of my blog "yr doa and your empathy for the charity talk on : 22nd November 2008 is needed" thank you and may good bless you all with more abundance. My deepest gratitude to SJMC, SMC, Dr Ling, PPUM, Prof Asma, Prof Aljafri and all doctors and staff who have assists Nabila, Dr Lim Meng Kang, Gleaneagles Hospital and IJN, Dr Haifa and Mr Pau, May God Bless you all and my hope is to see Nabila to have a healthy life....Amin

Nabila "My Precious Pearl"

2008-10-26T00:58:00.000+08:00

Bear With My English....That is my weakness but it won't stop me from writing...

2008-10-25T23:16:00.000+08:00

I always have problem in writing, i just write what i think is right....at times i know they wanted to say something when reading my writing....well who cares....i write what i think is right....i believe one day i will and can write better...all i need is practise as practise makes me perfect...so bear with me..do make comment.....

Why? I started writing in my very own Blog.......

2008-10-25T20:21:00.000+08:00

I have my very own reason of having my own blog...there is so much that i wish to share with people around the universe...my own experiences, the choices that I have chosen in my life and what Almighty have and had granted me with his tests through out has given me so much faith in loving the creator of the universe.....My families is the most precious in my life....My Late Dad, my mum, my siblings and all my nephews, nieces, my brother-in-laws and my Hubby sides too and not forgetting my siblings and in-laws grandsons and granddaughters (that makes me a granny too). The most precious in my life of cause is my immediate family - Anne Rae (that's the name my hubby wants me to put as my blogger name) an acronym that indicates my immediate family, but i preferred to be called Anna Raes. My children "my six angels" they are my inspirations...especially "my precious pearl in my life" - NABILA. SHE is the reason for me to survive in life.....My husband in the time of bad and good...we will be together....Everything will be written here.....