Sunday, September 20, 2009
Hari Raya Celebration with a new heart
It is indeed a special hari raya for the whole family...thanks to the almighty...to give us the moment to celebrate 2009 hari raya in allowing us to see Nabila in her joyous Eid Mubarak with a healthy and a corrective done to her heart. For me its the greatness gift from allah swt...amin.
Friday, July 24, 2009
Nabila's Diaries - Allah blessed her......
How should I start, it took me four months to update this moment, it was kind of traumatic moment for me...but I will keep it posted for others to read....Hope IJN don't mind I shared this pictures of Nabila, reason being at least I create some awareness. Nabila was addmitted on the 23rd March 2009 at 2.00 pm at Institut Jantung Negara.
As usual she looks like she is going for a relaxing hotel stay...although I kept her informed that she will have an open heart surgery "Mama nak Nabila sihat...tak biru-biru, Nabila kena kuat, doktor belah kat sini...sakit sikit je...Nabila nak sihat kan" means mama wants you to be healthy and strong, the doctor will do it here by showing exactly where the scare will be, just a slight pain, you want to be healthy aren't you she will then repeat "sakit sikit je" means very slight pain, each time she says that I will hug her, trying my level best and hold back my tears....I kept on repeating the lines everyday....and keep saying it will be alright....
Good about IJN or maybe thats the normal way to have an induction program for every heart patient that will go for surgery...what do and don't before and after each operation...
In this pictures she was browsing the IJN pamphlet....she acted as though she can read that's her she will show her interest in reading and viewing.....
Look at her I believe if she is normal, she will be an intelligent girl,but she is in her own intelligency, never she will make herself wasting time....you can see books, drawing and coloring block will always with her....
This picture was taken on the 25th March 2009,the nurses pushed nabila to the CC theater, the day that a cardiac cath was done...Cardiac catheterization (heart cath) is the insertion of a catheter into a chamber or vessel of the heart. This is done for both investigational and interventional purposes. http://en.wikipedia.org/wiki/Cardiac_catheterization.
Alhamdulillah everything when well, after the CC I was called and the MO told me that they might do the operation on Thursday, 26th March 2009 instead Friday, 27th March 2009....and Nabila was asked to start fasting from midnight onwards, well I felt a little confused and scared....in my tahajud that night I told allah "oh allah I whisper in my heart "give the best and bless her, you have given me the chance for almost 13 years to look, love and care for her....and now I am returning it to you allah...you know what best for her...as a care taker and guardian to her I "redha"....I was crying my heart out...my positive thinking says that I need to be strong and I have gone this far...this is the choice that I have choose, in spite of many objection and ideas...for me no turning back...no regret....thanks to allah for the moment....At about 2pm on Thursday, the MO came and told me they cannot proceed because there's a delay from the first case....kinda relieved as I am a bit scared, my thinking does not telly with my intuition when they said that they wanted to do on Thursday, I am more comfortable if they want it to be done on Friday...that the strong feeling I had at that time....
27th March 2009, it was a Friday....a day of a "penghulu hari" a day start for a muslim week...as early as 6am I have woke her up...its a third day I have to gave her an antiseptic bath...when I reaches her chest I will remind her "doktor akan buat kat sini...nabilah tak perlu risau sakit sikit je...doktor bagi ubat..." means "the doctor will do it here and don't be afraid, its a slight pain and they will gave you medication" I cannot hide my sorrow I broke down and quickly hug her and usually she did not cry but that morning she cried, she cried and the words that came out from her was "mama maaf" means "forgive me mama"....how could I hold back my tears....I have been hiding it all this while but that morning it was the most difficult moment for a person by the name of "mama" to handle...nine months I conceived her and nearly thirteen years she is always by her side...make a choice to leave the job I love...its always a choice for a mother to do.....
Another test when she refused to cooperate to be transferred to the stretcher when the staff are ready to push her to the OT, she told me "Benci Mama" I hate you was a traumatized moment in my life, after kisses her, I adjourned myself without any of my immediate family notice, I cried at the staircase....she would not understand and I know that's her expression to say why you make me suffers, I could be wrong but alhamdulillah I know that's not what she wants to said or may be not but at least I managed to tell how I love here, no mother would ever want to make her children suffers....for me its a test that I really valued every moment in bringing her up.
A moment that I will never forget...after eight hours in the operation theater...exactly at about 5pm, I was told that the operation was successful done and she was transferred to the Intensive Care Unit....what a relieved and my "syukur, alhamdulillah" to Allah, I was with Mak Su my husband's auntie from Pulau Pinang at the ICU waiting lobby...My husband has to sent two of my eldest daughter back to UIA Gombak,that means I'm alone without my husband and other children...suddenly the ICU head of security called "Keluarga untuk Nabila Abdul Raes sila masuk ke ICU, pakar sedang menunggu" - the family of Nabila please come in the surgeon is waiting...
At that time suddenly I can't hardly stand, I felt shortness of breath...luckily Mak Su told me to be more calm...think of Allah...well I remembered how I walked very slow just to regained my strength...
When I saw her, I do not know what to do, whether I should cry...but I managed to make myself calm and yet I can sense that my mind and soul are in the air.... Mr Ahmad Khadri that assisted Mr KK Pau was there, he started to explained about what they had done to Nabila's heart...honest I can't even focused to what he said...
Four and a half days she was in the ICU, with many doa from us and others, with the supports from my immediate family, siblings, in laws and friends and not forgetting Ms Evelyn Ch'ng and her brother-in-law, Dato Yee who actually have sacrifices her time to come just to do healing for her. For me besides having my faith to Allah, I will never gave up hope to find other alternatives for Nabila for the benefits of her well being.
To see her open her eyes and to see one by one of those massive gadgets on her been removed, I am more relief....Thanks to Allah....Syukur.
What I gather from here, all the test that Allah showers us, is to make us a very strong person and value things that we have in front of us....Nabila herself is a fighter...She herself have her own strong will power...well its not easy for me thou to balance up myself with her moods, she have all sorts of deals and temper that really at times make me get confused what to do, here I will like to conveyed my sincere thanks to all her siblings who take turns to look after here during her stays in IJN.
My "sujud syukur" to Allah,as I believed every test or joy that Allah showers me, is an indication that Allah actually is so near to us and from this test makes us the family more closer to each other.....
NABILA you are always our precious pearl.....
As usual she looks like she is going for a relaxing hotel stay...although I kept her informed that she will have an open heart surgery "Mama nak Nabila sihat...tak biru-biru, Nabila kena kuat, doktor belah kat sini...sakit sikit je...Nabila nak sihat kan" means mama wants you to be healthy and strong, the doctor will do it here by showing exactly where the scare will be, just a slight pain, you want to be healthy aren't you she will then repeat "sakit sikit je" means very slight pain, each time she says that I will hug her, trying my level best and hold back my tears....I kept on repeating the lines everyday....and keep saying it will be alright....
Good about IJN or maybe thats the normal way to have an induction program for every heart patient that will go for surgery...what do and don't before and after each operation...
In this pictures she was browsing the IJN pamphlet....she acted as though she can read that's her she will show her interest in reading and viewing.....
Look at her I believe if she is normal, she will be an intelligent girl,but she is in her own intelligency, never she will make herself wasting time....you can see books, drawing and coloring block will always with her....
This picture was taken on the 25th March 2009,the nurses pushed nabila to the CC theater, the day that a cardiac cath was done...Cardiac catheterization (heart cath) is the insertion of a catheter into a chamber or vessel of the heart. This is done for both investigational and interventional purposes. http://en.wikipedia.org/wiki/Cardiac_catheterization.
Alhamdulillah everything when well, after the CC I was called and the MO told me that they might do the operation on Thursday, 26th March 2009 instead Friday, 27th March 2009....and Nabila was asked to start fasting from midnight onwards, well I felt a little confused and scared....in my tahajud that night I told allah "oh allah I whisper in my heart "give the best and bless her, you have given me the chance for almost 13 years to look, love and care for her....and now I am returning it to you allah...you know what best for her...as a care taker and guardian to her I "redha"....I was crying my heart out...my positive thinking says that I need to be strong and I have gone this far...this is the choice that I have choose, in spite of many objection and ideas...for me no turning back...no regret....thanks to allah for the moment....At about 2pm on Thursday, the MO came and told me they cannot proceed because there's a delay from the first case....kinda relieved as I am a bit scared, my thinking does not telly with my intuition when they said that they wanted to do on Thursday, I am more comfortable if they want it to be done on Friday...that the strong feeling I had at that time....
27th March 2009, it was a Friday....a day of a "penghulu hari" a day start for a muslim week...as early as 6am I have woke her up...its a third day I have to gave her an antiseptic bath...when I reaches her chest I will remind her "doktor akan buat kat sini...nabilah tak perlu risau sakit sikit je...doktor bagi ubat..." means "the doctor will do it here and don't be afraid, its a slight pain and they will gave you medication" I cannot hide my sorrow I broke down and quickly hug her and usually she did not cry but that morning she cried, she cried and the words that came out from her was "mama maaf" means "forgive me mama"....how could I hold back my tears....I have been hiding it all this while but that morning it was the most difficult moment for a person by the name of "mama" to handle...nine months I conceived her and nearly thirteen years she is always by her side...make a choice to leave the job I love...its always a choice for a mother to do.....
Another test when she refused to cooperate to be transferred to the stretcher when the staff are ready to push her to the OT, she told me "Benci Mama" I hate you was a traumatized moment in my life, after kisses her, I adjourned myself without any of my immediate family notice, I cried at the staircase....she would not understand and I know that's her expression to say why you make me suffers, I could be wrong but alhamdulillah I know that's not what she wants to said or may be not but at least I managed to tell how I love here, no mother would ever want to make her children suffers....for me its a test that I really valued every moment in bringing her up.
A moment that I will never forget...after eight hours in the operation theater...exactly at about 5pm, I was told that the operation was successful done and she was transferred to the Intensive Care Unit....what a relieved and my "syukur, alhamdulillah" to Allah, I was with Mak Su my husband's auntie from Pulau Pinang at the ICU waiting lobby...My husband has to sent two of my eldest daughter back to UIA Gombak,that means I'm alone without my husband and other children...suddenly the ICU head of security called "Keluarga untuk Nabila Abdul Raes sila masuk ke ICU, pakar sedang menunggu" - the family of Nabila please come in the surgeon is waiting...
At that time suddenly I can't hardly stand, I felt shortness of breath...luckily Mak Su told me to be more calm...think of Allah...well I remembered how I walked very slow just to regained my strength...
When I saw her, I do not know what to do, whether I should cry...but I managed to make myself calm and yet I can sense that my mind and soul are in the air.... Mr Ahmad Khadri that assisted Mr KK Pau was there, he started to explained about what they had done to Nabila's heart...honest I can't even focused to what he said...
Four and a half days she was in the ICU, with many doa from us and others, with the supports from my immediate family, siblings, in laws and friends and not forgetting Ms Evelyn Ch'ng and her brother-in-law, Dato Yee who actually have sacrifices her time to come just to do healing for her. For me besides having my faith to Allah, I will never gave up hope to find other alternatives for Nabila for the benefits of her well being.
To see her open her eyes and to see one by one of those massive gadgets on her been removed, I am more relief....Thanks to Allah....Syukur.
What I gather from here, all the test that Allah showers us, is to make us a very strong person and value things that we have in front of us....Nabila herself is a fighter...She herself have her own strong will power...well its not easy for me thou to balance up myself with her moods, she have all sorts of deals and temper that really at times make me get confused what to do, here I will like to conveyed my sincere thanks to all her siblings who take turns to look after here during her stays in IJN.
My "sujud syukur" to Allah,as I believed every test or joy that Allah showers me, is an indication that Allah actually is so near to us and from this test makes us the family more closer to each other.....
NABILA you are always our precious pearl.....
Sunday, April 26, 2009
My sincere gratitude to the almighty and to all......
It has been quite a while I have not been blogging any feedback about my precious pearl....today is exactly a month after Nabila has undergone her open heart surgery ...simply because before the op the whole family especially me need to foresee a lot of preparation...
Prof. Dr Asma Omar, Paeds Specialist Cardiologist from University of Malaya Medical Centre, UMMC. a lady with a strong character but kind at heart. Twice she told me not much can be done for Nabila....Nabila has been her patient since 2nd day of birth till todate, close to 13 years now....after doing my own findings and without losing hope to see Nabila gets her corrective I went to see her again in June 2008, after a year lapse without doing anything, just witness Nabila goes on getting weaker and weaker, deep inside me was to see her get her strength like any normal child. I believe if we have faith Allah will lead us the way.....it just happen at the right moment Prof. referred Nabila's case to IJN.....and this picture was taken when Nabila had her 1st check up on the 4th June 2009 with Prof. Dr Asma, two months after her Open Heart operations. What else can i say to this lady, through Allah wills this lady have extended her truely and sincere heart to help Nabila....thank you prof. for making all the arrangement for Nabila. Thank you and may allah bless you.
This pictures was taken with the IJN Specialist Heart surgeon Mr KK Pau, Dr Rohana a HO/MO, Dr Rohana from Ipoh Hospital, Wad Mawar Nursing Manager and a staff nurse....two weeks after her major operations....nabila are able to move around......
In this picture Nabila with Mr Ahmad Khadri, the day he dropped by to see Nabila, is the day that he joined a new team...He was the one who have given us the full explaination process and the consequences that will happen during the operation, he is the 2nd surgeon assisting Mr KK Pau. Im glad he is one of them during the whole process going on....a stupid thing that I remembered telling him "Doctor please recite quranic verses when you want to do it to Nabila"....he replied "insyaallah puan, I will and thats what I always do... and thats the moment I can't control or hold back my tears"
The only picture that I have not able to take is with Dr Haifa, IJN Paeds Cardiologist, cute and pretty lady. I will get it taken later.
My sincere thanks to all of you IJN team and wad staff....(I will continue later).
Saturday, March 7, 2009
HAPPY BIRTHDAY TO MS EVELYN CH'NG
TO SOMEONE WHO HAVE WORKED AN EXTRA-MILES FOR THE NEEDS OF OTHERS - THANK YOU!
Dear Ms Evelyn Ch'ng happy birthday to you from All of us "Anna Raes" Family especially from Nabila....I believed you felt so touched when she wished you that morning right...she was so excited to pass you the card....all the way to Klang she kept on asking me to sing a birthday songs...thank you again....may you be blessed always.....
AGE IS JUST A NUMBER
Dear Ms Evelyn Ch'ng happy birthday to you from All of us "Anna Raes" Family especially from Nabila....I believed you felt so touched when she wished you that morning right...she was so excited to pass you the card....all the way to Klang she kept on asking me to sing a birthday songs...thank you again....may you be blessed always.....
AGE IS JUST A NUMBER
Nabila's Diaries
I created many event just for her....I need to balance and take things one at a time. In fact every end of each day, I will ensure to plan what next and next...I wanted to gave her the best and not forgetting to keep my faith to Allah.
I am careful in planning for her, planning for her means I also have to take care of my health....March 27th, 2009 needs everyone at home to be strong and healthy,at times I neglected them and make sure Nabila gets all the care and love...to my other children...sorry dear I just cannot cope...and yet I still want everyone to be happy...Most of the time I did my own healing conversation just focus and look forward....and even making the networking going....to ensure doa and prayers are being extended for Nabila's well being.
My sincere thanks to IDC/Ms Helen Sheibt and staff, Ms Evelyn Ch'ng for a well planned seminar.
My heartiest gratitude to Sekolah Rendah Seksyen 20, Shah Alam where Nabila attended her special education for almost 7 years, to the parents and teachers group, the headmistress, Puan Hjh Norsima Saari, all teachers especially the PPKI teachers and student for their kind effort doa and token given to Nabila's operations. May Allah bless all of you.
Thank you to Hjh Nasiyah, founder and a care taker of Rumah Qiraati, Taman Melawati in organising a "Khatam Quran and a special event of Doa Selamat for Nabila" at KTSN Global, Taman Melawati and thanks to Hjh Kiah for a lovely place extended for this function.
To Ms Evelyn for arranging a three days healing session for Nabila when the Taiwan healing group came to Malaysia. For those who wonder what treatment is this, according to David Herron "Healing is not the popular conception of removal of symptoms. Healing is to recover a greater experience of unity with the divine harmony, and our true selves. Healing is returning to a state of alignment with your Higher Self or true way of being". It is a western medical science that has made Healing be thought of as the removal of symptoms".
Nabila has received the treatment since November 2008, and thank you to Dato Yee, Ms Evelyn's brother in law for his time coming to the house and did the healing for Nabila.
For Nabila she seems to enjoy every moment that I schedule for her.....
I am careful in planning for her, planning for her means I also have to take care of my health....March 27th, 2009 needs everyone at home to be strong and healthy,at times I neglected them and make sure Nabila gets all the care and love...to my other children...sorry dear I just cannot cope...and yet I still want everyone to be happy...Most of the time I did my own healing conversation just focus and look forward....and even making the networking going....to ensure doa and prayers are being extended for Nabila's well being.
My sincere thanks to IDC/Ms Helen Sheibt and staff, Ms Evelyn Ch'ng for a well planned seminar.
My heartiest gratitude to Sekolah Rendah Seksyen 20, Shah Alam where Nabila attended her special education for almost 7 years, to the parents and teachers group, the headmistress, Puan Hjh Norsima Saari, all teachers especially the PPKI teachers and student for their kind effort doa and token given to Nabila's operations. May Allah bless all of you.
Thank you to Hjh Nasiyah, founder and a care taker of Rumah Qiraati, Taman Melawati in organising a "Khatam Quran and a special event of Doa Selamat for Nabila" at KTSN Global, Taman Melawati and thanks to Hjh Kiah for a lovely place extended for this function.
To Ms Evelyn for arranging a three days healing session for Nabila when the Taiwan healing group came to Malaysia. For those who wonder what treatment is this, according to David Herron "Healing is not the popular conception of removal of symptoms. Healing is to recover a greater experience of unity with the divine harmony, and our true selves. Healing is returning to a state of alignment with your Higher Self or true way of being". It is a western medical science that has made Healing be thought of as the removal of symptoms".
Nabila has received the treatment since November 2008, and thank you to Dato Yee, Ms Evelyn's brother in law for his time coming to the house and did the healing for Nabila.
For Nabila she seems to enjoy every moment that I schedule for her.....
Wednesday, February 18, 2009
Nabila Dairies
Last Monday 16th Febuary 2009 was Nabila's follow-up dental check-up at UMMC....she had her dental orientation tour....
As usual she seems to be very cooperative...thank you to the staff nurse who actually able to make her listen and focus.....
Nabila if you ever have a bad tooth dear....there will no more teeth for you sayang....or else mama have to get you a false teeth hehe....
Tuesday, February 17, 2009
Caring and Sharing "Save Adik Nabila/PDK Mutiara Hati Ku" charity Talk
Together We Can Make A Difference - 17th January 2009 (Wisma MCA, Jalan Ampang, KL)
First it was an idea that came from Ms Evelyn EL Ch'ng, JP and then the assistance and caring heart of Ms Helen Sheibt the General Director of SMI (M) Sdn Bhd to organised a one-day seminar "Creating Values In Your Child - Every Parent's Obligation" and without disregard of the race, gender, culture or any aspects Ms. Seibt believes her own affirmation in life and to others as "If you want RAINBOW, you got to put up the RAIN, To get what you never had, you must do what you have never done". Amongst the guest speakers who were present and contributed their time and effort for the charity seminar was :-
* AP Dr Rogayah A Razak - University Kebangsaan Malaysia (as the
master of ceremony of the day)
* Dr Norizan Razak (PhD) - Director, Urban Ethos Consultancy Group
* Ms Evelyn EL Ch’ng (PJK, JP) - Managing Director, C&P Ventures Sdn Bhd
* Hjh Bedah Razak - Nabila’s mother
* Mr Howard Khoo - Group CEO, Hing Yiap Knitting Ind. Bhd
* Ms Helen Seibt - Founder of IDC Group of Companies
(Hope to put their photos soon)
IZ (Ezuan Sulaini) a finalist from the reality show One In A Million made a special appearance and performance to entertain guests, it was truly touching to see Nabila inviting everyone to stand and clap their hands to IZ’s song entitled “Gonna Be Alright”
A famous dramatist/comedian Ms Angeline Tan also made a special appearance on stage interacting with IZ, who later invited Moe Nasrullah from Fly FM on stage.
To all whom have made it happened and attended the seminar especially Ms Evelyn EL Ch'ng, Ms Helen Sheibt and IDC Staff, Mr Howard Khoo, AP Dr Rogayah, Dr Norizan, Ms Angeline Tan, IZ Sulaini and Moe Nasrullah, members of the public, my family members (my siblings and in laws), Dato Ch'ng families, my ex-boss from ex-MAS Puan Noraishah Hashim, Biz Tag Group from Tagged "Virtual became reality)Puan Dib, Cik Ainee and Cik Aza, Ms Penny (Napoleon Hill, Malaysia and Help University faculty of Psychology.
My sincere gratitude to the almighty and thanks to all for the support in terms of donations and prayers (doa). Thank you and may god bless all of you with more abundance.
(Picture imported from Mossovi Model)
Subscribe to:
Posts (Atom)