DOWN SYNDROME AWARENESS MONTH

I'm not aware that this month is a Down's month until i visited Bridget's page....i guess i will visit her page often....

Having Faith - Nabila My Precious Pearl

Never regret of having her...."syukur" to allah giving me faith and strength to carry on with this bundle of joy...born in October 14th 1996, i remembered how allah have guided me 2 weeks before her birth i was told that i might have an abnormal child....alhamdulilah i turned myself to Allah....sholat hajat, taubat and istikharah are my weapon to seek patience....believed me a week passed, whilst sitting alone during lunch, my ex-manager, Puan Noraishah Tan Sri Hashim (the late judge daughter) came and asked if its ok to joined me, for me to be honest i always tried to avoid having lunch with others thats the character each time i got myself pregnant. Thanks to allah for that moment, for his guidance...Puan Noraisha starts telling me about her family and suddenly she told me about his brother in law (Prof Aljafri) who happened to be the Head of Surgery of Peads ward, funny thing was i just listened closely every information that she told me.....Nobody knows about what my gynea had told me not even my hubby, i guessed as much my colleague felt my obvious changes yup very quiet and thats the reason why i think my ex-manager accompany me, or may be thats the result of my istikharah....alhamdulilah. 14 October 1996 morning, the alarm of having my labour started, as usual im a person will not getting myself in a panic mood called my hubby, he forever very committed with work, in the car i told him to be at my side don't leave me until the baby delivered....slowly i told him if ever things does not appeared to be what expected, be patience and accept it as allah tests....and of cause his forgiveness that i want for an easy delivery....he as ever will joke and said the day that he married me he has accepted me for what i am....forgive and forget...thats him until today....i luv him for that.....Believed me when they pushed me in the labour room, only one nurse and a midwife were there, my gynea happened not to be around...according to the midwife he will reached in time, still have time she told me.....not even half an hour i had a terrible pain and as normal i will start recite verses especially "ayat kursi", the midwife and the nurse noticed and i told them its time for me to deliver....they asked me to hold i said i can't....im so lucky the midwife was fast enough and i delivered nabila without my gynea....imagined from past experienced they usually will put the baby on my chest but this time after another gynea came they took away nabila without saying anything....my hubby was outside when i delivered nabila....i knew allah wants me to have the tests...my hubby tried not to show any expression....i kept on asking where is nabila.....till i was transfered to my room....then the paeds doctor came and told me to accept what allah have given me....not a single tears came out from my eyes when the doctor told me.....dear allah thank you for giving me the strength to accept her and show me the path to be strong....2 hours later the paeds doctor came and told us that nabila conditions are not stable and the cost at the hospital will be high and told me it is advisable to transfer her to the government hospital and thats where i remembered what my ex-manager had told me and i asked my hubby to call her and told about nabila....alhamdulilah the next morning nabila was transfered and that afternoon they had to do a colostomy op for her or else nabila cannot be safe.......for me that the first time i put aside my confinement period....two weeks later once again i was told that nabila suffers from a chronic heart disease "AV Canal Defect - in a centre of the chamber theres a hole".....this time i can't control myself anymore i cried and cried, until a nurse came and comforted me and the next morning she gave me a book "You light up my life" can't remember the author name, about a couple who happened to have a son "a down's child with a congenital heart" i realised that i have to be strong and I have to be sure im healthy to look after nabila, i have 4 more children to look after and thats the important reason i kept on and have to face the fact that i must be strong and have faith.....within 8 months nabila have undergone 5 operations and suprisingly, thou she had a heart disease she recovered fast in every series of ops,...thats miracle....miracle if we have strong believes that every test that allah wants us to face actually teaches us a lesson....alhamdulilah no doubt every month she suffers a bad bronchitis and the whole family hardly leave a norm life, as in and out hospital is just a routine task for 2 years....i was lucky that i was granted a no paid leave......they predicted that she can only leave the most 12 years and i have gone to two other private hospital and the answered to it let nabila go naturally.....she got her first attack in July 2005 and thats the time i make a promise to myself not to give up hope and i believe that there must be high technology invented by then, alhamdulilah when i went to see Prof Asma last June she recommended to refer nabila to IJN.....and this time they accepted Nabila's case and how thankful i am and i believed if we have faith in whatever we do allah will grant us....ask you will be given.....23th March 2009, nabila will be admitted, 25th March a cardiac cath will be done and 27th March 2009, nabila will be operated with two corrective, one the PA Banding replacement and two the corrective of the 4 holes, according to the surgeon we have to know its a high risk op and no guarantee but i have prepared for me what i do is what allah wants me to do....for me "doa and tawakal" and to all my families, friends and viewers of my blog "yr doa and your empathy for the charity talk on : 22nd November 2008 is needed" thank you and may good bless you all with more abundance. My deepest gratitude to SJMC, SMC, Dr Ling, PPUM, Prof Asma, Prof Aljafri and all doctors and staff who have assists Nabila, Dr Lim Meng Kang, Gleaneagles Hospital and IJN, Dr Haifa and Mr Pau, May God Bless you all and my hope is to see Nabila to have a healthy life....Amin

Nabila "My Precious Pearl"

Bear With My English....That is my weakness but it won't stop me from writing...

I always have problem in writing, i just write what i think is right....at times i know they wanted to say something when reading my writing....well who cares....i write what i think is right....i believe one day i will and can write better...all i need is practise as practise makes me perfect...so bear with me..do make comment.....

Why? I started writing in my very own Blog.......

I have my very own reason of having my own blog...there is so much that i wish to share with people around the universe...my own experiences, the choices that I have chosen in my life and what Almighty have and had granted me with his tests through out has given me so much faith in loving the creator of the universe.....My families is the most precious in my life....My Late Dad, my mum, my siblings and all my nephews, nieces, my brother-in-laws and my Hubby sides too and not forgetting my siblings and in-laws grandsons and granddaughters (that makes me a granny too). The most precious in my life of cause is my immediate family - Anne Rae (that's the name my hubby wants me to put as my blogger name) an acronym that indicates my immediate family, but i preferred to be called Anna Raes. My children "my six angels" they are my inspirations...especially "my precious pearl in my life" - NABILA. SHE is the reason for me to survive in life.....My husband in the time of bad and good...we will be together....Everything will be written here.....