Tuesday, January 27, 2009

Ketika Pengorbanan Menjadi Harapan - Robby Andoyo

Saat kurenungi makna hidup manusia di Dunia ini
Ku menerawang akan pentingnya pengorbanan diri
Ketika Kuberfikir bahwa segalanya tak ada yg abadi
Ku teguhkan langkah mencari ketenangan hakiki



Harapan adalah Pengorbanan melalui ketulusan
Karna ia menjadi amanah yang di perhitungkan
Tabahkan hati saat menghadapi segala cobaan
Karna cobaan akan berganti dengan kebahagiaan



Setiap manusia memiliki kecenderungan dalam hidupnya
Kecenderungan yg bermula dari harapan segenap jiwanya
Bila keistiqomahan menyatu dalam aliran darah manusia
Segala harapannya akan menjadi kenyataan yg tak sia-sia



Keikhlasan dalam setiap pengorbanan ibarat mata air
Senantiasa menjadi harapan bagi para-para musafir
Kesuksesan adalah proses terbaik bukanlah hasil akhir
Sebagaimana manusia dituntut untuk selalu berfikir





Alhamdulillah.... ketika menyambut hari jadi Nabila yang ke 13(14hb Oktober 2009) , dengan keadaan jantungnya yang telah di baik pulih.... harapan agar pengalaman ini dapat di jadikan contoh kepada semua ibubapa yang mempunyai anak-anak istimewa bahawa Allah berikan anugerah yang bernilai untuk kita sama-sama berusaha kerana setiap kejadian itu bersebab.....amin.

Monday, January 26, 2009

"Caring and Sharing" its more to Empathy and not Sympathy

When i accepted Ms Evelyn's idea and suggestion to have a caring and sharing seminar to collect some funds for nabila's operations, it is an in prompt to decision that I have made. I have accepted it because of a reason that a seminar are given and in return the participants gain knowledge and the payment for the seminar proceeds to nabila's pre n post operation and also to PDK Mutiara Hati Ku.

I remembered that was in August where i told Ms E of my financial constraints, where i have no longer have savings and my husband still do not have a permanent job..because of his pending case with industrial court...he only gets a bit of allowance as a consultant as and when there is a job with a start-up cargo aviation company. I have resigned from my job since Nabila starts her special class and from home i do a freelance reseller to market training, I need to be around home and be ensured that my distance are around Klang valley and if need be out of shah alam i have to make sure Nabila have someone to look after either it must be during school holidays or semesters break for her siblings to take care of her if I'm not around...most is 2 or 3 days not more than that, Nabila will miss me and due to this she will have a mild attacked...as a mother I have done tremendously for everyone in the family, because of the needs I have to balance up in whatever I want, but never I will stop and not easily giving up in achieving my aim....

With the expense of having a special need care for nabila and also have five more daughters still studying and we have not been so lavish with our daily expenses, everything needs should be handled in a thrifty way of leaving...but my visualization always says that, it is not permanent...the time will come we will get back what we once had...it is a matter of doing thing persistently and I believe Allah will help us.

My siblings they have shown their concerns but how long i can depend on them, they also have their own responsibilities to their own families....yes they did help but I just can't depend on them. Before doing the reseller marketer, I was in the multi-level marketing, I did very well but when nabila started to have series of attacked I decided to stop its a choice that I have made to be with my daughter...the savings from the three years MLM has worn out since last year April. The impact was much greater when last month I received a court order to go on a bankruptcy. There is nothing for me to be ashamed off when I say this, I believe I am not the only one who suffers this, it is facts, not that I purposely want that to happen, I have a choice to make and I have decided to stay at home to look after nabila, I did not purposely trying to runaway from the debts that not even RM50k and to be called a bankruptcy.

When PPUM suggested nabila case to be transferred to IJN pretty well I am aware and my mind start thinking where can I find enough cash, as it is, now my expenses is always over the budget. For many I might not be the right person to be helped, for many I might have siblings who can afford to help me but when I accepted the caring and sharing event for nabila on 17 January 2009 it is not seeking for sympathies, it was done because of empathy, the talk was organised very professionally by SMI/IDC and Hiap Ying Industries, why help this lady???? there are many others who are more suitable to receive.... some may say...for me because Allah have selected Nabila to get the empathy from this people. I thank the organiser Ms Helen Seibt and all her staff, Mr Howard, Ms Evelyn E L Ch'ng, Dr Rogayah and Dr Norizan who have ask their circle of contacts to contribute and even volunteered to be the guest speakers with an excellence topics presented on that day. Not forgetting IZ OIAM, whom have passion in giving his voice and song for a charitable needs since he was in his early days in university and to all who have contributed may god bless you all and all my siblings and my hub's siblings who always there to give me a morale support and assistance since my moment of difficulties.

I thanked Allah with this superb people i have met and have, I have learned a lot from this event, commitment, sincerity, values and honesty....the time will come when my turn to give and it is not necessary to the same person that have help me or vice visa but to others when everything "gonna be alright" for me and I know it won't be long, Insyaallah....with the 1/3 fundings I will make payment to IJN, my next step is to find my way to "Pusat Zakat" and also an appeal to IJN as I believe I have a concrete reason to ask for waiver on behalf of Nabila and with my financial constraints, may be to others I don't but today I realise if you have values and honesty then Allah will help and make things easier...this is a major operation and I hope it will be the last for my precious one, one operation with two correctives...but I keep on visualizing her smile after the op as Allah are giving me and hub a test through her...may Allah lead me to the right and straight path....amin.

"The Five Pillars of Islam".
""One of the most important principles of Islam is that all things belong to God, and that wealth is therefore held by human beings in trust. The word zakat means both 'purification' and 'growth'. Our possessions are purified by setting aside a proportion for those in need, and, like the pruning of plants, this cutting back balances and encourages new growth. The Prophet said: 'Charity is a necessity for every Muslim.' He was asked: 'What if a person has nothing?' The Prophet replied: 'He should work with his own hands for his benefit and then give something out of such earnings in charity.' The Companions asked: "What if he is not able to work?' The Prophet said: 'He should help poor and needy persons.' The companions further asked: 'What if he cannot do even that?' The Prophet said 'He should urge others to do good.' The Companions said 'What if he lacks that also?' The Prophet said 'He should check himself from doing evil. That is also charity.'"


Wallahualam...(Thank you Allah, let me have my share of giving in return to what I have been receiving from this people that I have met....I believe there is a reason to what had happened.)

Sunday, January 25, 2009

A four hours spent at media prima tq NTV7

As early as 6.15am on 22 January, nabila and I made our way to media prima at Bandar Utama for the breakfast show at NTV7, thanks for cik fauziah of pr media and cik sheila producer of TBS....thank you for giving us the slot, though theres a lot to share, it seems the channel are more focusing on the OBAMA's presidentary moments....


She has ever craze about any musical or entertainment show gets her very excited...when we about to turn in she saw TV3 signage...and starts to tell "mama mama tu tu" and TV3 is always her favourite channel besides TV9.


She call Ms Evelyn E L Ch'ng as "Aunty aunty" the person who has muted the event "Save Adik Nabila Caring and Sharing Event on 17 January 2009 at Wisma MCA. For Nabila she has treated this lady as part of the family so do all of us.....

Always love posing infront of camera like an artist hehe not you E, i mean nabila....

Nevertheless i will always treasure this moment, its a precious moment of my life having nabila.....Elgelbert Hamperdick song "SHE" will always potrays her as SHE is the reason for me to survive.....




This is one of her favourite artist IZ Sulaini with his song "GOONA BE ALRIGHT", Iz has shown many people at the "Caring and Sharing Event" that his voice is part of his aim to charitable effort for the needy....Well done IZ, apart Iz, nabila always like sheila OIAM, Ayu OIAM....

Hey what about Faizal Tahir...i remembered I brought Nabila for a movie "Waris Jari Hantu" where the song sang by Faizal Tahir was in the movie, thats how nabila likes the song and a fan's of Faizal Tahir's silently and seems Nabila was so lucky when i brought her to media prima faizal too have his slot with Hot FM and seems very lucky whilst having breakfast after the show we saw faizal tahir...everything that i do ....not denying i do love music and entertainment myself, thats how nabila also have that haha....i managed to ask permission from the guard there to take photo of nabila n him....thats her with her shy look...thank you faizal...as i do this for my precious nabila....thank you allah for such a wonderful journey...alhamdulilah

Nabila's Diaries when she's an infant......."The Two Words" that has made us strong...



Two Words
by Cheryl Ward

Your birth brought us closer
As death lingered near
Your strength as you struggled
Gave flight to our fear
Down Syndrome they whispered
on the day after your birth
Two words that portrayed
A false image of your worth



Those words did not tell us
Of the love you would bring
Or the power your smile has
To make our hearts sing
Down Syndrome didn't tell us
What kind of child you would be
Filled with amazing surprises
Shared with your father and me
Hard work, determination,
Teaching and learning, it's true



Down Syndrome means much of this
For each of us, not just you
Wonder child, spirited child
You've grown and you've thrived
Your every achievement
Still fills us with pride



No matter the voice used
Two words can't describe
The fullness you've added
To so many lives
Down Syndrome, those frightening words
Whispered so long ago
Never did they prepare me
For the person I now know.

Saturday, January 24, 2009

Kosmo - 23hb Januari 2009

Miliki kekuatan luar biasa( http://www.kosmo.com.my/kosmo/arkib.asp?y=2009&dt=0123&pub=Kosmo&sec=Pesona&pg=ps_01.htm) Apakah perasaan anda apabila doktor mengesahkan bayi yang sedang dikandung akan lahir sebagai seorang yang tidak sempurna mental dan fizikalnya? Wartawan FATEN SAPHILLA MOHAMED ISA menyelami perasaan seorang ibu yang mempunyai anak sindrom down. APABILA doktor mengesahkan Rohana Abdul Razak mengandung, dia begitu teruja. Walaupun dia telah mempunyai empat orang anak, tetapi kehamilan kali ini dirasakan agak berbeza. Keterujaan itu ada sebabnya. Ini kerana keempat-empat anak yang dilahirkan sebelum itu ialah anak perempuan. Jadi, doa dipanjatkan agar kehamilan kali ini dikurniakan seorang anak lelaki. Namun, harapan Rohana musnah tatkala mendapat perkhabaran dari doktor menjelang dua minggu detik kelahiran anak kelimanya. Doktor mendapati anak yang bakal dilahirkan bukanlah seperti kanak-kanak biasa. Dia bakal mendapat anak perempuan 'abnormal' "Masa itu, saya sedih sangat. Keadaan rumah tangga tidak berapa baik sebab masing-masing dalam keadaan tertekan. Saya menjadi murung dan pendiam. Setiap malam, saya buat sembahyang hajat minta petunjuk daripada Allah," "Akhirnya, saya reda. Mungkin Tuhan hendak menguji saya. Kita hanya merancang, tetapi Tuhan yang menentukan segalanya. Saya terima apa saja yang dikurniakan Tuhan," katanya kepada wartawan Kosmo! ketika ditemui di rumahnya di Seksyen 19, Shah Alam, Selangor baru-baru ini. Umum mengetahui, kanak-kanak sindrom down mempunyai wajah hampir serupa walaupun dilahirkan daripada ibu berbangsa India, Cina, Melayu dan lain-lain bangsa di dunia. Kanak-kanak sindrom down biasanya lebih berisiko tinggi untuk mendapat penyakit jantung berbanding dengan kanak-kanak biasa. Mereka juga bakal berdepan dengan pelbagai penyakit lain. Malah, jangka hayat mereka juga tidak lama. Bedah memberitahu, selepas hari kedua kelahiran, anaknya terpaksa dibedah kerana doktor mendapati saluran membuang najisnya tertutup (tidak mempunyai pembukaan najis). Keadaan menjadi semakin kritikal, kerana perut anaknya semakin membesar akibat gas terkumpul di dalam perut. Ini boleh mengakibatkan najis keluar melalui saluran lain iaitu mulut. "Doktor terpaksa melakukan pembedahan colostomy" katanya. Pembedahan colostomy dibuat bagi membolehkan najis terkumpul dikeluarkan. Melalui colostomy, perut kanak-kanak itu akan ditebuk dan dipasang beg khas sebagai saluran membuang najis. Menurut Rohana, selepas tiga minggu anak yang diberi nama Nabila itu dilahirkan, dia dijangkiti pula dengan penyakit jantung kongenital. Malah, setiap injap jantungnya berlubang termasuklah injap utama. Ini memaksa doktor melakukan pembedahan kali ketiga ke atas Nabila. Keadaan Nabila yang seperti nyawa dihujung tanduk menyebabkan Rohana banyak menghabiskan masa di hospital. Keadaan itu juga menyebabkan Rohana terpaksa berhenti kerja sebagai Eksekutif Sumber Manusia di sebuah syarikat penerbangan bagi menumpukan sepenuh masa kepada Nabila. "Pada masa itu, anak saya lebih penting daripada pekerjaan. Pada mulanya, saya fikir tindakan saya berhenti kerja bakal menghadapi masalah dari segi kos perubatan Nabila nanti. Namun kata suami, dia bekerja dan mampu menyara keluarga termasuk menanggung kos perubatan Nabila," kata ibu kepada enam orang anak perempuan itu. Selepas Nabila, Rohana melahirkan anak keenam, juga seorang perempuan. Rohana memberitahu, keadaan Nabila ketika itu kritikal dan doktor mengesahkan berkemungkinan anaknya tidak dapat bertahan lama. Namun, keadaan sebaliknya berlaku. "Nabila selamat selepas menjalani pembedahan. Doktor beritahu kanak-kanak ini (Nabila) mempunyai kekuatan luar biasa," katanya yang menceritakan detik cemas tersebut. Kini, Nabila sudah mencecah umur 13 tahun. Bagaimanapun, pembedahan kali keenam perlu dihadapinya pada 27 Mac ini. Ini kerana, doktor mengenal pasti beberapa kecacatan baru pada jantungnya dan pembedahan untuk membetulkannya adalah penting. Namun begitu, Rohana menghadapi tekanan kerana kos pembedahan Nabila dijangka mencecah RM40,000 dan mungkin lebih. Suami Rohana pula, kini menghadapi masalah dalam pekerjaan sekali gus membuatkan keluarga itu dalam dilema. Tekanan yang berulangkali dihadapi menyebabkan Rohana terlantar sakit. Doktor mengesahkan Rohana mengalami kekurangan darah dan menasihatkannya untuk banyak berehat. "Ketika saya sakit, apa yang mengharukan saya ialah Nabila sendiri yang menjaga saya. Memicit kepala saya, malah menghantar makanan kepada saya," katanya bercerita tentang anak istimewanya itu. Selain Nabila, Rohana mempunyai lima lagi anak perempuan iaitu Nadirah, 23, yang sedang menuntut di Universiti Islam Antarabangsa Malaysia dalam bidang Sains Politik; Nadia, 21, juga menuntut di universiti yang sama dalam bidang Kewangan; Natrah, 19, kini menuntut di Kolej Universiti Teknologi dan Pengurusan Malaysia; Noor Diana, 15, belajar di Sekolah Menengah Seksyen 9, Shah Alam dan anak bongsunya, Noor Nayli, 6. Apabila diminta menceritakan keistimewaan Nabila, dengan senyuman terukir pada wajahnya, dia memberitahu Nabila merupakan seorang kanak-kanak yang aktif. Menurutnya, Nabila suka membantunya ketika di dapur. Sama ada memotong sayur atau mengukur sukatan beras untuk dimasak, Nabila boleh melakukannya sendiri. "Walaupun dia macam itu (kanak-kanak istimewa), dia pandai membuat kerja dapur. Saya tidak pernah memaksanya. Dia sendiri bersemangat menolong saya. Dia juga suka bergambar dan pandai bergaya di depan kamera," ujarnya lagi. Kali pertama penulis berjumpa Nabila di rumahnya, Nabila sendiri membuka pintu sambil memberitahu, emaknya pergi ke kedai sekejap. Kemudian, dia menepuk-nepuk kerusi sambil mempelawa saya duduk. Terdetik di hati saya betapa sopan kanak-kanak ini. Sambil menjamu selera berlaukkan ayam masak merah, mulutnya rancak bercerita mengenai drama yang ditontonnya. Apabila emaknya pulang dengan membawa beg plastik berisi roti dan kek, dia terus mendapatkan emaknya sambil berkata: "mama ni cantiklah". Mengakhir perbualan, Rohana berkata, walaupun sukar dia menjaga Nabila, namun rezeki sentiasa ada. Malah semasa dia menghadapi masalah kewangan, muncul Mdm Evelyn E. L. Ch'ng yang kini menjadi insan yang sudi membantu serta penasihat dalam syarikat yang diusahakan Rohana dan suami. Menurutnya, dia bertemu dengan Evelyn ketika mengikuti salah satu program motivasi. Rohana mengikuti program itu untuk menaikkan semangat dan kekuatan diri kepada sesiapa sahaja yang menghadapi masalah. Antara pertolongan Evelyn ialah membantunya mengadakan seminar 'Selamatkan Adik Nabila' bagi mengutip dana untuk Nabila. Seminar itu telah diadakan pada 17 Januari lalu dan berjaya mengumpul sumbangan sehingga RM25,000. Bagi mereka yang mahu menyumbang untuk membiayai kos pembedahan Nabila, bolehlah menghubungi Rohana di talian 019-3618 983 atau Evelyn).